woensdag 12 augustus 2026

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A LIFE TAKEN BY CIPRO

Oliver Newell & Wayne Geist – Two Lives, One Tragic Pattern


Oliver Newell

OLIVER NEWELL

Died September 21, 2012

IMPORTANT ALERT!
Be careful with antibiotics like CIPRO for treatment of infections.
CIPRO and similar drugs may cause Fluoroquinolone Toxicity.
It made Oliver Newell suffer terribly for 9 months and eventually may have contributed to his death.

FLUOROQUINOLONE TOXICITY
These risks are often not made obvious.

Please share this broadly in your network as a public service to raise awareness.


Donald Mabrey 05/05/2011
*** Rest in Peace ***

“This is one thing I told myself I would do this year. I am going to tell the story of how Cipro changed my Daddy’s life.

My Dad lived with me during the last years of his life after Mom passed away. He dealt with chronic bladder infections for over 40 years.

Doctors could never figure out the cause until he was diagnosed with cancer at stage 4 – a rare Urachal cancer.

He took Cipro (250 mg) for ten years which kept his bladder infections under control – sometimes he had to have Cipro in IV’s.

A few months later Dad said the doctor took him off Cipro and that is when he went downhill.

By the time I figured out what happened to me it was too late for my Dad – he was already a full-blown Floxie.

Oliver Newell., A LIFE TAKEN BY CIPRO

 


 **A LIFE TAKEN BY CIPRO**  

**Oliver Newell & Wayne Geist – Two Lives, One Tragic Pattern**


### OLIVER NEWELL  

**Died September 21, 2012**


**IMPORTANT ALERT!**  

Be careful with antibiotics like CIPRO for treatment of infections.  

CIPRO and similar drugs may cause Fluoroquinolone Toxicity.  

It made Oliver Newell suffer terribly for **9 months** and eventually may have contributed to his death.


**FLUOROQUINOLONE TOXICITY**  

These risks are often not made obvious.


**PLEASE SHARE**  

this broadly in your network as a public service to raise awareness.


---


**Donald Mabrey 05/05/2011**  

***Rest in Peace***


“This is one thing I told myself I would do this year. I am going to tell the story of how Cipro changed my Daddy’s life.  


My Dad lived with me during the last years of his life after Mom passed away. He dealt with chronic bladder infections for over 40 years.  


Doctors could never figure out the cause until he was diagnosed with cancer at stage 4 – a rare Urachal cancer.  


He took Cipro (250 mg) for ten years which kept his bladder infections under control – sometimes he had to have Cipro in IV’s.  


A few months later Dad said the doctor took him off Cipro and that is when he went downhill.  


**By the time I figured out what happened to me it was too late for my Dad – he was already a full-blown Floxie.**”


---


### WAYNE BERNARD GEIST – MARCH 14, 2011  

**A PREVENTABLE DEATH**


**WHAT HAPPENED?**  

- Wayne Geist had a **SEVERE ALLERGY** to Levaquin (previous visit caused peripheral neuropathy & loss of use of his legs for 3 months).  

- His allergy was clearly noted on his hospital records and wristband.  

- Despite this, he was given the **MAXIMUM IV dose** of Levaquin.  

- No less than **THREE** opportunities were missed to prevent this deadly mistake (doctor, pharmacist, nurse).


**Timeline:**  

- **FEB 24** – Admitted to Lodi Memorial Hospital. Allergy to Levaquin noted.  

- **FEB 26** – Given **MAXIMUM IV dose** of Levaquin despite allergy.  

- **LESS THAN 3 HOURS LATER** – Breathing became increasingly labored. Transferred to ICU and placed on a ventilator.  

- **MARCH 14** – Died after 16 days in the hospital.


A husband, a father, a loved one – gone because warnings were ignored. This could have been prevented.


**THE LAWSUIT CLAIMS**  

- Hospital knew from a previous visit that Levaquin had caused a serious reaction.  

- Negligence & negligent credentialing led to his death.  

- Seeking unspecified damages.


“Was there a compelling reason to use Levaquin that overrode the risk of an adverse reaction?”  

— Pharmacy Expert


---


**FLUOROQUINOLONES (Like CIPRO & LEVAQUIN) CAN CAUSE:**  

- Tendon rupture  

- Peripheral neuropathy  

- CNS effects  

- Muscle & joint damage  

- And more...


**RISKS ARE REAL. WARNINGS MATTER. LIVES DEPEND ON IT.**


**LEARN. SHARE. SAVE LIVES.**  

Educate yourself and others about the real risks of fluoroquinolone antibiotics.


**FQ100 FOUNDATION**  

Fighting for recognition, research, and protections for FQAD survivors.  

www.fq100.org


**MY QUIN STORY**  

Evidence-based education and resources about fluoroquinolone toxicity.  

www.myquinstory.org


Remember Oliver.  

Remember Wayne.  

**NEVER IGNORE THE RISKS.**


---


**Compiled by Teri Koko** – FQ Patient Advocate since 2013  

Design & layout created with AI assistance.


---


### Concrete summary of what happened


**Oliver Newell (died 21 September 2012)**  

He was given Cipro (and similar fluoroquinolones). He suffered severe fluoroquinolone toxicity for nine months. The toxicity is believed to have contributed to his death. The infographic presents him as a clear example of how these drugs can cause lasting, sometimes fatal harm even when used for ordinary infections.


**Donald Mabrey’s father (story shared 5 May 2011)**  

He had chronic bladder infections for more than 40 years. Doctors never found the underlying cause until he was diagnosed with stage-4 urachal cancer. For ten years he was kept on Cipro 250 mg (sometimes intravenously). When the doctor finally stopped the Cipro, his condition deteriorated rapidly. By the time his son understood what fluoroquinolone toxicity (“Floxie”) was, it was too late — the father was already severely affected.




**Wayne Bernard Geist (died 14 March 2011)**  

This is described as a completely preventable death.  

- He already had a documented severe allergy to Levaquin: a previous exposure had caused peripheral neuropathy and loss of use of his legs for three months.  

- The allergy was clearly written in his hospital chart and on his wristband.  

- On 24 February he was admitted to Lodi Memorial Hospital; the allergy was noted.  

- On 26 February he was nevertheless given the maximum intravenous dose of Levaquin.  

- Within less than three hours his breathing became severely labored; he was transferred to ICU and put on a ventilator.  

- He died on 14 March after 16 days in hospital.  


A lawsuit claimed the hospital knew about the previous serious reaction, that negligence (and negligent credentialing) caused his death, and that three separate opportunities (doctor, pharmacist, nurse) to stop the drug were missed. A pharmacy expert asked whether there was any compelling reason to give Levaquin that justified overriding the known risk of an adverse reaction.


The overall message of the poster is that fluoroquinolone antibiotics (Cipro, Levaquin and similar drugs) can cause serious, permanent, and sometimes fatal toxicity — tendon rupture, peripheral neuropathy, central-nervous-system effects, muscle and joint damage, and more — and that these risks are often not made clear enough to patients or even to medical staff. The cases of Oliver Newell and Wayne Geist are presented as concrete illustrations of how ignoring or underestimating these risks can cost lives.


Floxed Levaquin - Bobby Caldwell, the iconic singer _ What You Won't Do for Love

Bobby Caldwell, the iconic singer best known for hits like "What You Won't Do for Love," "Next Time I Fall," "My Flame," and "Open Your Eyes," was enjoying life with his wife, Mary, until he visited an urgent care center for a simple head cold. He was prescribed an antibiotic called Levaquin. Within a few days, he lost the ability to walk. Not long after, he passed away. The tragedy of Bobby and Mary Caldwell needs to be shared so others do not suffer from "Bobby Caldwell syndrome"—bilateral Achilles tendon rupture and severe toxicity caused by fluoroquinolone antibiotics.#bobbycaldwell #fluoroquinolonetoxicity #health #antibiotics #medicine


 https://www.facebook.com/reel/1703566197367507















dinsdag 11 augustus 2026

: LEVAQUIN • FLUOROQUINOLONE TOXICITY • SPINAL CSF LEAKS

 



MEET KAREN SHETTLER PADDOCK
Karen’s published journal tells the powerful truth of what she endured after being poisoned by the fluoroquinolone antibiotic
Levaquin® (levofloxacin). Her story includes fluoroquinolone toxicity, systemic tendinitis, chronic pain, intracranial hypotension,
and spinal CSF leaks.
• Saw 35 doctors before a diagnosis of spinal CSF leak in 2012.
• Endured numerous procedures and extraordinary pain.
• Died on August 7, 2013.
“There is nothing wrong with you. You are just doing this to get attention or pain pills.”
— Words Karen heard far too often.
KAREN’S JOURNAL
Karen’s Journal of CSF Leak Headaches and Chronic Pain
How Intracranial Hypotension and the Fluoroquinolone Antibiotic Levaquin® (Levofloxacin) Killed Me
by the late Karen Shettler Paddock & Robert Paddock
Bob preserved her words — more than 9,000 journal entries, diaries and emails — and turned them into a book so others could
benefit from her experiences. He receives no money from sales; 100% of royalties go to the Spinal CSF Leak Foundation.
KAREN’S JOURNEY — A CHRONOLOGY OF EVENTS
October 1989 Car Accident
Karen was in a serious car accident. Headaches, neck pain and other symptoms began in this period.
2004 Levaquin® (Levofloxacin)
Karen was prescribed Levaquin, a fluoroquinolone antibiotic. According to Bob, symptoms they associated with the
fluoroquinolone exposure emerged approximately six months later.
2004 and Beyond A Long, Difficult Road
Years passed before they understood the connection to the antibiotic: Fluoroquinolone toxicity • Systemic tendinitis •
Intracranial hypotension • Chronic pain • Life-changing disability
2012 Spinal CSF Leak Diagnosis
After being evaluated by 35 doctors, Karen received a diagnosis of a possible spinal CSF leak.
August 7, 2013 Karen Passed Away
THE CONNECTION THAT DESERVES SERIOUS ATTENTION
63 PEOPLE
Bob Paddock has now heard directly from 63 people who report that their own CSF leak began after taking a
fluoroquinolone antibiotic.
• Karen’s published story explicitly describes fluoroquinolone antibiotic poisoning from Levaquin® (levofloxacin) and systemic
tendinitis as part of her medical history.
• Bob has spoken about the FQ–CSF leak connection within the CSF leak community, including presenting his observations
at the first CSF Leak conference. This brought the issue to the attention of many physicians who specialize in CSF leaks.
• Fluoroquinolones are known to cause serious connective tissue injuries, including tendinitis and tendon rupture. The spinal
dura is connective tissue. Connective tissue weakness is a recognized risk factor for spontaneous CSF leaks.
• Sixty-three patient reports should not be ignored. The FQ–CSF leak connection deserves serious attention, careful
documentation and dedicated scientific research.
THERE ARE THREE WAYS YOU CAN HELP
1. Donate Directly
Please consider supporting the Spinal CSF Leak Foundation. Donations help fund research, education, awareness, and support
for people whose lives are affected by spinal CSF leaks.
Donate here: spinalcsfleak.org/donate
2. Buy Karen’s Book
If you would like to learn much more about Karen’s experience in her own words, consider purchasing her book. Bob Paddock
receives NO MONEY from sales of Karen’s book — 100% of the royalties from the purple cover book (paperback or Kindle) go to
the Spinal CSF Leak Foundation.
Available on Amazon and Barnes & Noble (also in Kindle format).
3. Read Karen & Bob’s Story
Learn more about Karen and Bob’s journey and the mission of the Foundation:
spinalcsfleak.org/when-pain-is-relentless
KAREN LEFT BEHIND HER WORDS. BOB MADE SURE THEY WEREN’T LOST.
NOW WE CAN HELP MAKE SURE THEY’RE HEARD.
Read. Donate. Purchase the book. Share. Awareness may help the next person find an answer sooner.
SPINAL CSF LEAK FOUNDATION — Hope. Help. Healing.


https://www.facebook.com/reel/26685831937760973

https://www.facebook.com/reel/26685831937760973 



 

This is a Reel from the Facebook page “Fluoroquinolonas Alerta”.

In the video, Dr. Luis Alfredo Pérez (also known as Dr. Luis Pérez) discusses the case of Talia Smith (sometimes spelled Thalia), an American woman from Massachusetts.

Who is Talia Smith?

She is a woman who, in April 2021, took only 3 tablets of ciprofloxacin (Cipro) for a simple urinary tract infection. Until then, she was healthy, active, and the primary caregiver for her husband (a former Marine who became a quadriplegic).

After those few pills, she developed severe fluoroquinolone toxicity (floxing):

  • She could no longer walk

  • Intense neuropathic pain

  • Massive weight loss (down to about 65 pounds / ~30 kg)

  • She ended up in palliative/hospice care

  • Permanent disability

Her story has been widely covered in the media (People Magazine, NewsNation, The Sun, etc.).

Who is Dr. Luis Alfredo Pérez?

He is a Spanish-speaking doctor who creates medical education content, particularly on TikTok under the account @conocimientoencapsulas. He comments on cases of fluoroquinolone toxicity, such as Talia Smith’s, to raise awareness about the risks of these antibiotics (Cipro, levofloxacin, etc.).

The page Fluoroquinolonas Alerta is an awareness/advocacy page about the dangers of fluoroquinolones.

“Destroyed by Fluoroquinolones: Rafał Habram’s Fight for Survival”








Rafał Habram. LoveU ❤️ BIG UP! 🙌 😘 😘


From 2020 to 2023, I suffered from chronic sinusitis. The only medication that did not help was ciprofloxacin.


I was hospitalized for nearly three weeks, lifting my head only to eat and go to the toilet. I was so weak that I could not even go to the bathroom normally. I also had a high fever and did not even feel the needle during the injection. Before the injection, my whole body felt strange, and I did not even feel the needle.


I left the hospital very discouraged, thinking that time would fix everything. I took the prescribed medications and did psychotherapy. Unfortunately, it got worse, with no improvement at all. I saw many doctors who noticed nothing, only increasing the doses of gabapentin from three times two hundred to three times six hundred milligrams.


I sought help through osteopathy and neurological rehabilitation. Unfortunately, it got even worse. My body started hurting more, every touch felt like a burn, electrical paresthesias. After a while, I had stomach pains after taking the medications, and a sensation of electrical energy transmission from the head to the feet.


The search for a way out ended with MRIs, EMGs and other examinations. None of them helped, and the situation even worsened because of this electrical energy transmission.


I decided to go to a clinic in Germany. They made an additional diagnosis of small fiber polyneuropathy and performed a skin biopsy. I was given a Metypred infusion, and the problem got worse. The treatment was supposed to last three days, one thousand milliliters per day. After the first dose, I refused the rest, which made things even worse.


I felt terrible, my whole body hot, as if I could feel something inside. Burning and itching with red, painful fingers, and cramps that have accompanied me ever since. Burning on the face and almost the entire body. I developed terrible paresthesia of the fingers, feet and whole body, which did not exist before. Blood pressure is very high and muscle cramps are intensifying.


I stopped all medications and took vitamins C, B and D. Fighting for my life, I managed to get to the SOR at the UCK in Katowice, where I was admitted to neurology. A complete analysis was done, and I left in a wheelchair.


Today I know that this is the work of fluoroquinolone medications.


Since I started feeling this bad state, it has lasted six months, and my body has become more and more flabby. I have already lost my mind and remained unconscious. My leg has become more sensitive, and of a strong person like me, who was still there last June, nothing remains. I am systematically losing weight despite having an appetite, and new headaches appear, which confirms the effect of the medications.


Unfortunately, I know that my situation is very difficult, and I need a little help to survive a little longer. I have a small child who does not see what is happening to his father, terrified, who sees how I am becoming flabby. I have terrible itching, the skin has peeled off, and I feel terribly ill.


I wrote this in April of this year... today it is already a complete tragedy, he is no longer really alive. My skin, my bones, the constant pain, and my once fit body.


I really need help. I was recently in the hospital in Katowice Ochojec, in neurology, only to discover that they considered me “mentally ill”... They just did a blood test and an MRI or CT scan, and I was terrified because I am more and more destroyed after each stay. Now I am in the hospital in Łódź, where it is even worse. The doctors treating me are FQAD doctors: a Pole from Poznań, Doctor Michalak, and currently Doctor Stefan Piper from Germany.


Unfortunately, the medications have not changed the situation, which is becoming more difficult every day. My body does not accept supplements well. Along the way, I had many homeopaths and naturopaths who pushed me to take more supplements and medications. Once again, it is useless.


Today, every day is a struggle, and such a loss of muscle mass that I try not to move. Unfortunately, every activity causes muscle mass loss and nerve pain or a body cramp. I am on the verge of exhaustion because I no longer see any hope. I have the feeling that my body is dying, and I know that it is no longer fighting.


I have thought about suicide every day because of my condition, and I am waiting, unfortunately, for the courage, because no one can survive such degradation of the body to the end.


I ran a business, I had a beautiful family life before the illness. I lost everything!!!


Please help me and show the world what fluoroquinolone group antibiotics do.


Rafał.

-------------------------------------------------------------------------------- 

Rafał Habram. LoveU ❤️ BIG UP! 🙌 😘 😘


Van 2020 tot 2023 leed ik aan chronische sinusitis. Het enige medicijn dat niet hielp, was ciprofloxacine.


Ik lag bijna drie weken in het ziekenhuis en tilde mijn hoofd alleen op om te eten en naar het toilet te gaan. Ik was zo zwak dat ik niet eens normaal naar de badkamer kon. Ik had ook hoge koorts en voelde de naald bij de injectie niet eens. Voor de prik voelde mijn hele lichaam raar aan, en ik voelde de naald niet eens.


Ik verliet het ziekenhuis erg ontmoedigd, denkend dat de tijd alles wel zou regelen. Ik nam de voorgeschreven medicijnen en deed psychotherapie. Helaas werd het erger, zonder enige verbetering. Ik zag veel artsen die niets opmerkten en alleen de doseringen van gabapentine verhoogden, van drie keer tweehonderd naar drie keer zeshonderd milligram.


Ik zocht hulp bij osteopathie en neurologische revalidatie. Helaas werd het nog erger. Mijn lichaam begon meer pijn te doen, elk contact voelde als een brandwond, elektrische paresthesieën. Na een tijdje kreeg ik maagpijn na het innemen van de medicijnen, en een gevoel van elektrische energieoverdracht van het hoofd naar de voeten.


De zoektocht naar een uitweg eindigde met MRI’s, EMG’s en andere onderzoeken. Geen van alle hielp, en de situatie werd zelfs erger door deze elektrische energieoverdracht.


Ik besloot naar een kliniek in Duitsland te gaan. Ze stelden een aanvullende diagnose van polyneuropathie van de kleine vezels en deden een huidbiopsie. Ik kreeg een infuus met Metypred, en het probleem werd erger. De behandeling moest drie dagen duren, duizend milliliter per dag. Na de eerste dosis weigerde ik de rest, wat de zaken nog erger maakte.


Ik voelde me vreselijk, mijn hele lichaam heet, alsof ik iets van binnen voelde. Brandingen en jeuk met rode, pijnlijke vingers, en krampen die me sindsdien altijd vergezellen. Branding in het gezicht en bijna over het hele lichaam. Ik ontwikkelde een vreselijke paresthesie van de vingers, voeten en het hele lichaam, die er eerder niet was. De bloeddruk is erg hoog en de spierkrampen worden heviger.


Ik stopte met alle medicijnen en nam vitamine C, B en D. Al vechtend voor mijn leven lukte het me om bij de SOR van het UCK in Katowice te komen, waar ik werd opgenomen op de neurologie. Er werd een volledige analyse gedaan, en ik ging weg in een rolstoel.


Vandaag weet ik dat dit het werk is van de fluorochinolonen-medicijnen.


Sinds ik dit slechte toestand begon te voelen, duurt het al zes maanden, en mijn lichaam is steeds slapper geworden. Ik ben al mijn verstand kwijtgeraakt en bewusteloos geweest. Mijn been is gevoeliger geworden, en van een sterke persoon zoals ik, die vorige juni nog bestond, blijft niets over. Ik val systematisch af ondanks eetlust, en er komen nieuwe hoofdpijnen bij, wat het effect van de medicijnen bevestigt.


Helaas weet ik dat mijn situatie erg moeilijk is, en ik heb een beetje hulp nodig om nog iets langer te overleven. Ik heb een klein kind dat niet ziet wat er met zijn vader gebeurt, doodsbang, dat ziet hoe ik slap word. Ik heb vreselijke jeuk, de huid is losgelaten, en ik voel me vreselijk ziek.


Ik heb dit in april van dit jaar geschreven… vandaag is het al een complete tragedie, hij is niet echt meer in leven. Mijn huid, mijn botten, de constante pijn, en mijn ooit fitte lichaam.


Ik heb echt hulp nodig. Ik was onlangs in het ziekenhuis in Katowice Ochojec, op de neurologie, om te ontdekken dat ze me als « geestelijk ziek » beschouwden… Ze deden alleen een bloedonderzoek en een MRI of CT-scan, en ik was doodsbang omdat ik na elk verblijf steeds meer vernietigd raak. Nu ben ik in het ziekenhuis in Łódź, waar het nog erger is. De artsen die me behandelen zijn FQAD-artsen: een Pool uit Poznań, dokter Michalak, en momenteel dokter Stefan Piper uit Duitsland.


Helaas hebben de medicijnen de situatie niet veranderd, die elke dag moeilijker wordt. Mijn lichaam accepteert supplementen niet goed. Onderweg heb ik veel homeopaten en natuurgenezers gehad die me aanspoorden om meer supplementen en medicijnen te nemen. Opnieuw is het nutteloos.


Vandaag is elke dag een strijd, en zo’n verlies van spiermassa dat ik probeer niet te bewegen. Helaas veroorzaakt elke activiteit spiermassaverlies en zenuwpijn of een kramp van het lichaam. Ik sta op de rand van uitputting omdat ik geen hoop meer zie. Ik heb het gevoel dat mijn lichaam sterft, en ik weet dat het niet meer vecht.


Ik heb elke dag aan zelfmoord gedacht vanwege mijn toestand, en ik wacht, helaas, op de moed, omdat niemand zo’n aftakeling van het lichaam tot het einde kan overleven.


Ik leidde een bedrijf, ik had een mooi gezinsleven vóór de ziekte. Ik heb alles verloren!!!


Alstublieft, help me en laat de wereld zien wat de antibiotica uit de groep van de fluorochinolonen doen.


Rafał.

---------------------------------------------------------------------------------

Rafał Habram. LoveU ❤️ BIG UP! 🙌 😘 😘


De 2020 à 2023, j'ai souffert de sinusite chronique. Le seul médicament qui n'a pas aidé, c'était la ciprofloxacine.


J'ai été hospitalisé près de trois semaines, ne levant la tête que pour manger et aller aux toilettes. J'étais si faible que je ne pouvais même pas aller à la salle de bain normalement. J'avais aussi une forte fièvre et je ne sentais même pas l'aiguille pendant l'injection. Avant la piqûre, tout mon corps se sentait bizarre, et je ne sentais même pas l'aiguille.


Je suis sorti de l'hôpital très découragé, pensant que le temps arrangerait tout. J'ai pris les médicaments prescrits et fait de la psychothérapie. Malheureusement, ça s'est aggravé, sans aucune amélioration. J'ai vu plein de médecins qui n'ont rien remarqué, augmentant juste les doses de gabapentine, de trois fois deux cents à trois fois six cents milligrammes.


J'ai cherché de l'aide en ostéopathie et rééducation neurologique. Malheureusement, ça s'est encore aggravé. Mon corps a commencé à faire plus mal, chaque contact était comme une brûlure, des paresthésies électriques. Après un moment, j'ai eu des douleurs d'estomac après avoir pris les médicaments, et une sensation de transmission d'énergie électrique de la tête aux pieds.


La recherche d'une issue s'est terminée avec des IRM, des EMG et d'autres examens. Aucun n'a aidé, et la situation a même empiré à cause de cette transmission électrique d'énergie.


J'ai décidé d'aller dans une clinique en Allemagne. Ils ont posé un diagnostic supplémentaire de polyneuropathie des petites fibres, et fait une biopsie cutanée. On m'a donné une perfusion de Metypred, et le problème s'est aggravé. Le traitement devait durer trois jours, mille millilitres par jour. Après la première dose, j'ai refusé le reste, ce qui a rendu les choses encore pires.


Je me sentais terrible, tout le corps chaud, comme si je sentais quelque chose à l'intérieur. Brûlures et démangeaisons avec les doigts rouges, douloureux, et des crampes qui m'accompagnent depuis toujours. Brûlure sur le visage et presque tout le corps. J'ai développé une terrible paresthésie des doigts, des pieds et de tout le corps, qui n'existait pas avant. La tension artérielle est très élevée et les crampes musculaires s'intensifient.


J'ai arrêté tous les médicaments et pris des vitamines C, B et D. En luttant pour ma vie, j'ai réussi à rejoindre le SOR à l'UCK de Katowice, où j'ai été admis en neurologie. On a fait une analyse complète, et je suis sorti en fauteuil roulant.


Aujourd'hui, je sais que c'est le travail des médicaments fluorochinolones.


Depuis que j'ai commencé à sentir ce mauvais état, ça dure six mois, et mon corps est devenu de plus en plus flasque. J'ai déjà perdu la tête et je suis resté sans conscience. Ma jambe est devenue plus sensible, et d'une personne forte comme moi, qui était encore là en juin dernier, il ne reste plus rien. Je perds du poids de façon systématique malgré l'appétit, et de nouveaux maux de tête apparaissent, ce qui confirme l'effet des médicaments.


Malheureusement, je sais que ma situation est très difficile, et j'ai besoin d'un peu d'aide pour survivre un peu plus longtemps. J'ai un petit enfant qui ne voit pas ce qui arrive à son père, terrorisé, qui voit comment je deviens flasque. J'ai des démangeaisons terribles, la peau s'est décollée, et je me sens terriblement malade.


Je l'ai écrit en avril de cette année... aujourd'hui c'est déjà une tragédie complète, il n'est plus vraiment vivant. Ma peau, mes os, la douleur constante, et mon corps autrefois en forme.


J'ai vraiment besoin d'aide. J'étais récemment à l'hôpital à Katowice Ochojec, en neurologie, pour découvrir qu'on me considérait « malade mental »... Ils ont fait juste une prise de sang et une IRM ou scanner, et j'étais terrifié parce que je suis de plus en plus détruit après chaque séjour. Maintenant je suis à l'hôpital à Łódź, où c'est encore pire. Les médecins qui me traitent sont des médecins FQAD : un Polonais de Poznań, le docteur Michalak, et actuellement le docteur Stefan Piper d'Allemagne.


Malheureusement, les médicaments n'ont pas changé la situation, qui devient chaque jour plus difficile. Mon corps n'accepte pas bien les compléments. Sur le chemin, j'ai eu beaucoup d'homéopathes et de naturopathes qui m'ont poussé à prendre plus de compléments et de médicaments. Une fois de plus, c'est inutile.


Aujourd'hui, chaque jour est une lutte, et une telle perte de masse musculaire que j'essaie de ne pas bouger. Malheureusement, chaque activité provoque une perte de masse musculaire et des douleurs nerveuses ou une crampe du corps. Je suis au bord de l'épuisement parce que je ne vois plus aucun espoir. J'ai l'impression que mon corps est en train de mourir, et je sais qu'il ne se bat plus.


J'ai pensé au suicide tous les jours à cause de ma condition, et j'attends, malheureusement, le courage, parce que personne ne peut survivre à une telle dégradation du corps jusqu'au bout.


J'ai dirigé une entreprise, j'avais une belle vie familiale avant la maladie. J'ai tout perdu !!!


S'il vous plaît, aidez-moi et montrez au monde ce que font les antibiotiques du groupe des fluorochinolones.


Rafał.

maandag 10 augustus 2026

Most of the groups and linkages of the fluoroquinolones that are known 1




 
1

Liste des principaux groupes et ressources de soutien et d’activisme autour de la toxicité des fluoroquinolones (FQ / FQAD / floxies) dans le monde


Organisations et sites principaux


Fluoroquinolone Toxicity Study (États-Unis)

Site : https://fq100.org

Page listant les groupes de soutien : https://fq100.org/find-support

Association à but non lucratif qui finance des recherches indépendantes et centralise beaucoup de groupes de soutien.


Quintox Support UK (Royaume-Uni)

Site : https://www.quintoxsupport.co.uk

Email : quintoxuk@btinternet.com

Groupe très actif en advocacy, a participé à l’audition publique de l’EMA en 2018.


Canadian Quinolone Support Group (Canada)

Site : http://canquinsupport.weebly.com

Objectif : soutien, information et advocacy pour les victimes canadiennes.


Association Fluoroquinolones France (France)

Site : https://www.fluoroquinolones-france.fr

Association loi 1901 qui regroupe plusieurs centaines de victimes en France, anime un groupe Facebook fermé et milite pour une meilleure information et une prise en charge.


My Quin Story (États-Unis)

Site : https://www.myquinstory.info

Guide historique des groupes Facebook : https://www.myquinstory.info/guide-fluoroquinolone-facebook-groups-pages/


Groupes Facebook principaux (internationaux et généraux)


Fluoroquinolone Toxicity 24/7 Live Chat Group

https://www.facebook.com/groups/191063714251094


Fluoroquinolone Toxicity Worldwide Group

https://www.facebook.com/groups/1105499342800113/


Surviving Antibiotic Adverse Reactions Avelox, Cipro, Levaquin, Floxin

https://www.facebook.com/groups/261231253984443


Floxed Treatment – Healing Fluoroquinolone Toxicity

https://www.facebook.com/groups/floxedtreatment


FQAD Fluoroquinolone Associated Disability Public Group

https://www.facebook.com/groups/764618707017951


This is Floxed Up - Advocacy Group for Fluoroquinolone Toxicity

https://www.facebook.com/groups/3361898517305386


FQ Awareness and Education

https://www.facebook.com/groups/FQAwarenessAndEducation


Floxie Finder (pour se rencontrer localement)

https://www.facebook.com/groups/222676757897021


Floxie Hangout

https://www.facebook.com/groups/256123468063447


Fluoroquinolone Antibiotic Toxicity (page publique)

https://www.facebook.com/FluoroquinoloneToxicity


My Quin Story (page)

https://www.facebook.com/MyQuinStory


Groupes par pays ou région


Pays-Bas

Nederlands Fluorochinolonen Group

https://www.facebook.com/groups/997027542123215


Royaume-Uni

Quinolone Toxicity Support UK

https://www.facebook.com/groups/quinolonetoxicitysupportuk


France

Page Facebook associée à l’Association Fluoroquinolones France

https://www.facebook.com/avelox.oflocet.ciprofloxacine

Groupe fermé « Quinolones France » (accessible via l’association)


Allemagne

https://www.facebook.com/groups/658857264453649

https://www.facebook.com/profile.php?id=61581550875420


Espagne et Amérique latine

https://www.facebook.com/groups/682014232210462

https://www.facebook.com/groups/538719363903916

https://www.facebook.com/groups/1216430965156129


Brésil

https://www.facebook.com/groups/floxiesbrasil/


Canada 

https://www.facebook.com/groups/545585045494227


Australie

https://www.facebook.com/groups/1713944815557865


Belgique

https://www.facebook.com/groups/1243504816615565/


Finlande

https://www.facebook.com/groups/785081024892381

https://www.facebook.com/groups/1501745554023528


Hongrie

https://www.facebook.com/groups/1933770050270150


Pologne

https://www.facebook.com/groups/682014232210462 (partagé parfois avec d’autres)


Turquie

https://www.facebook.com/groups/973105337879706


Europe (général)

Groupe Fluoroquinolone Toxicity Victims in Europe (cité lors de l’audition EMA 2018)


États-Unis (régionaux)

New England Floxies

https://www.facebook.com/groups/123826181348026


Autres ressources et notes


Beaucoup de ces groupes sont privés ou semi-privés. Il faut généralement envoyer une demande d’adhésion et parfois répondre à quelques questions pour prouver que l’on est concerné.


La liste ci-dessus regroupe les groupes les plus visibles et actifs repérés en 2025-2026. De nouveaux groupes locaux apparaissent régulièrement. La page https://fq100.org/find-support reste l’une des meilleures sources pour mettre à jour cette liste.


Cette liste est destinée à être copiée telle quelle dans un blog ou un document.


2

List of the main support and advocacy groups and resources on fluoroquinolone toxicity (FQ / FQAD / floxies) worldwide


Main organizations and websites


Fluoroquinolone Toxicity Study (United States)

Website: https://fq100.org

Support groups page: https://fq100.org/find-support

Non-profit organization that funds independent research and centralizes many support groups.


Quintox Support UK (United Kingdom)

Website: https://www.quintoxsupport.co.uk

Email: quintoxuk@btinternet.com

Very active advocacy group that participated in the EMA public hearing in 2018.


Canadian Quinolone Support Group (Canada)

Website: http://canquinsupport.weebly.com

Goal: support, information and advocacy for Canadian victims.


Association Fluoroquinolones France (France)

Website: https://www.fluoroquinolones-france.fr

French non-profit association that brings together several hundred victims in France, runs a closed Facebook group and campaigns for better information and care.


My Quin Story (United States)

Website: https://www.myquinstory.info

Historical guide to Facebook groups: https://www.myquinstory.info/guide-fluoroquinolone-facebook-groups-pages/


Main Facebook groups (international and general)


Fluoroquinolone Toxicity 24/7 Live Chat Group

https://www.facebook.com/groups/191063714251094


Fluoroquinolone Toxicity Worldwide Group

https://www.facebook.com/groups/1105499342800113/


Surviving Antibiotic Adverse Reactions Avelox, Cipro, Levaquin, Floxin

https://www.facebook.com/groups/261231253984443


Floxed Treatment – Healing Fluoroquinolone Toxicity

https://www.facebook.com/groups/floxedtreatment


FQAD Fluoroquinolone Associated Disability Public Group

https://www.facebook.com/groups/764618707017951


This is Floxed Up - Advocacy Group for Fluoroquinolone Toxicity

https://www.facebook.com/groups/3361898517305386


FQ Awareness and Education

https://www.facebook.com/groups/FQAwarenessAndEducation


Floxie Finder (to meet locally)

https://www.facebook.com/groups/222676757897021


Floxie Hangout

https://www.facebook.com/groups/256123468063447


Fluoroquinolone Antibiotic Toxicity (public page)

https://www.facebook.com/FluoroquinoloneToxicity


My Quin Story (page)

https://www.facebook.com/MyQuinStory


Groups by country or region


Netherlands

Nederlands Fluorochinolonen Group

https://www.facebook.com/groups/997027542123215


United Kingdom

Quinolone Toxicity Support UK

https://www.facebook.com/groups/quinolonetoxicitysupportuk


France

Facebook page linked to Association Fluoroquinolones France

https://www.facebook.com/avelox.oflocet.ciprofloxacine

Closed group “Quinolones France” (accessible via the association)


Germany

https://www.facebook.com/groups/658857264453649

https://www.facebook.com/profile.php?id=61581550875420


Spain and Latin America

https://www.facebook.com/groups/682014232210462

https://www.facebook.com/groups/538719363903916

https://www.facebook.com/groups/1216430965156129


Brazil

https://www.facebook.com/groups/floxiesbrasil/


Canada

https://www.facebook.com/groups/545585045494227


Australia

https://www.facebook.com/groups/1713944815557865


Belgium

https://www.facebook.com/groups/1243504816615565/


Finland

https://www.facebook.com/groups/785081024892381

https://www.facebook.com/groups/1501745554023528


Hungary

https://www.facebook.com/groups/1933770050270150


Poland

https://www.facebook.com/groups/682014232210462 (sometimes shared with others)


Turkey

https://www.facebook.com/groups/973105337879706


Europe (general)

Fluoroquinolone Toxicity Victims in Europe group (mentioned during the 2018 EMA hearing)


United States (regional)

New England Floxies

https://www.facebook.com/groups/123826181348026


Other resources and notes


Many of these groups are private or semi-private. You usually need to send a membership request and sometimes answer a few questions to prove that you are affected.


The list above includes the most visible and active groups identified in 2025-2026. New local groups appear regularly. The page https://fq100.org/find-support remains one of the best sources to keep this list updated.


This list is intended to be copied as-is into a blog or document.


3

Elenco dei principali gruppi e risorse di sostegno e attivismo sulla tossicità dei fluorochinoloni (FQ / FQAD / floxies) nel mondo


Organizzazioni e siti principali


Fluoroquinolone Toxicity Study (Stati Uniti)

Sito: https://fq100.org

Pagina con l’elenco dei gruppi di sostegno: https://fq100.org/find-support

Associazione no-profit che finanzia ricerche indipendenti e centralizza molti gruppi di supporto.


Quintox Support UK (Regno Unito)

Sito: https://www.quintoxsupport.co.uk

Email: quintoxuk@btinternet.com

Gruppo molto attivo nell’advocacy, ha partecipato all’audizione pubblica dell’EMA nel 2018.


Canadian Quinolone Support Group (Canada)

Sito: http://canquinsupport.weebly.com

Obiettivo: sostegno, informazione e advocacy per le vittime canadesi.


Association Fluoroquinolones France (Francia)

Sito: https://www.fluoroquinolones-france.fr

Associazione francese che riunisce diverse centinaia di vittime in Francia, gestisce un gruppo Facebook chiuso e milita per una migliore informazione e presa in carico.


My Quin Story (Stati Uniti)

Sito: https://www.myquinstory.info

Guida storica ai gruppi Facebook: https://www.myquinstory.info/guide-fluoroquinolone-facebook-groups-pages/


Principali gruppi Facebook (internazionali e generali)


Fluoroquinolone Toxicity 24/7 Live Chat Group

https://www.facebook.com/groups/191063714251094


Fluoroquinolone Toxicity Worldwide Group

https://www.facebook.com/groups/1105499342800113/


Surviving Antibiotic Adverse Reactions Avelox, Cipro, Levaquin, Floxin

https://www.facebook.com/groups/261231253984443


Floxed Treatment – Healing Fluoroquinolone Toxicity

https://www.facebook.com/groups/floxedtreatment


FQAD Fluoroquinolone Associated Disability Public Group

https://www.facebook.com/groups/764618707017951


This is Floxed Up - Advocacy Group for Fluoroquinolone Toxicity

https://www.facebook.com/groups/3361898517305386


FQ Awareness and Education

https://www.facebook.com/groups/FQAwarenessAndEducation


Floxie Finder (per incontrarsi localmente)

https://www.facebook.com/groups/222676757897021


Floxie Hangout

https://www.facebook.com/groups/256123468063447


Fluoroquinolone Antibiotic Toxicity (pagina pubblica)

https://www.facebook.com/FluoroquinoloneToxicity


My Quin Story (pagina)

https://www.facebook.com/MyQuinStory


Gruppi per paese o regione


Paesi Bassi

Nederlands Fluorochinolonen Group

https://www.facebook.com/groups/997027542123215


Regno Unito

Quinolone Toxicity Support UK

https://www.facebook.com/groups/quinolonetoxicitysupportuk


Francia

Pagina Facebook collegata all’Association Fluoroquinolones France

https://www.facebook.com/avelox.oflocet.ciprofloxacine

Gruppo chiuso “Quinolones France” (accessibile tramite l’associazione)


Germania

https://www.facebook.com/groups/658857264453649

https://www.facebook.com/profile.php?id=61581550875420


Spagna e America Latina

https://www.facebook.com/groups/682014232210462

https://www.facebook.com/groups/538719363903916

https://www.facebook.com/groups/1216430965156129


Brasile

https://www.facebook.com/groups/floxiesbrasil/


Canada

https://www.facebook.com/groups/545585045494227


Australia

https://www.facebook.com/groups/1713944815557865


Belgio

https://www.facebook.com/groups/1243504816615565/


Finlandia

https://www.facebook.com/groups/785081024892381

https://www.facebook.com/groups/1501745554023528


Ungheria

https://www.facebook.com/groups/1933770050270150


Polonia

https://www.facebook.com/groups/682014232210462 (a volte condiviso con altri)


Turchia

https://www.facebook.com/groups/973105337879706


Europa (generale)

Gruppo Fluoroquinolone Toxicity Victims in Europe (citato durante l’audizione EMA 2018)


Stati Uniti (regionali)

New England Floxies

https://www.facebook.com/groups/123826181348026


Altre risorse e note


Molti di questi gruppi sono privati o semi-privati. Di solito è necessario inviare una richiesta di adesione e a volte rispondere ad alcune domande per dimostrare di essere interessati.


L’elenco sopra include i gruppi più visibili e attivi individuati nel 2025-2026. Nuovi gruppi locali appaiono regolarmente. La pagina https://fq100.org/find-support rimane una delle migliori fonti per aggiornare questo elenco.


Questo elenco è destinato a essere copiato così com’è in un blog o in un documento.