Notition of me they did to me Antonino Troisi

 What did the doctors do when I was floxed? Did they help me?

No. They attacked me.

They falsified my medical file. They wrote that I was a hypochondriac, a liar, that I was exaggerating. They downplayed the tinnitus caused by Avelox by claiming it had come out of nowhere, that one could easily live with it, that it was not important, that it was temporary and that it would pass.

They contacted my previous doctors to spread lies about me and claim that I had said things against them. They even contacted my ex-wife to tell her that I had said serious things about them.

In 2010 I was in a specialized hospital for the tinnitus caused by Avelox. This tinnitus appeared very quickly and it is extremely disabling: 45 to 60 decibels at 7000 hertz.

They telephoned the hospital in Antwerp, the team of Professor Dirk De Ridder, the greatest tinnitus specialist in the world. They said that I was a hypochondriac, a liar, that I was attacking them, that I was insulting them and that I was provoking them, while they presented themselves as caring doctors who only wanted what was best for me.

Result: in Antwerp they objectively diagnosed that my neurons were hyperactive on the opposite side of the tinnitus, and that I had hearing loss in the right ear, exactly where the tinnitus is located. Professor Dirk De Ridder also found intracranial pressure and pressure in the right ear. He directed me to an endocrinologist.

But because of their constant harassment — them and the doctor’s wife — who kept calling and harming me with every doctor I saw, the doctors blocked me. In Antwerp they finally told me: “We will no longer help you, we will no longer treat you, go somewhere else.” The professor refused to complete the diagnosis and the follow-up was stopped.

The doctor even called me at home to insult me. He was taking revenge because I had said that Prozac had destroyed me. In 1994 they had prescribed me Prozac even though I already had eosinophilic asthma, tachycardia and diabetes. They had sent me to psychiatry.

I had to wait for years before I could get any care somewhere. During that time my wife cheated on me with her boss while I was floxed and poisoned. She did it twice. I was floxed twice, she betrayed me twice, then she left and left me with debts. I was four thousand euros in the red when she left.

I was never able to really rebuild myself, because the doctors never stopped attacking me.

That is what they did.
They did not help me.
They destroyed me a little more.What did the doctors do when I was floxed? Did they help me?

No. They attacked me.

They falsified my medical file. They wrote that I was a hypochondriac, a liar, that I was exaggerating. They downplayed the tinnitus caused by Avelox by claiming it had come out of nowhere, that one could easily live with it, that it was not important, that it was temporary and that it would pass.

They contacted my previous doctors to spread lies about me and claim that I had said things against them. They even contacted my ex-wife to tell her that I had said serious things about them.

In 2010 I was in a specialized hospital for the tinnitus caused by Avelox. This tinnitus appeared very quickly and it is extremely disabling: 45 to 60 decibels at 7000 hertz.

They telephoned the hospital in Antwerp, the team of Professor Dirk De Ridder, the greatest tinnitus specialist in the world. They said that I was a hypochondriac, a liar, that I was attacking them, that I was insulting them and that I was provoking them, while they presented themselves as caring doctors who only wanted what was best for me.

Result: in Antwerp they objectively diagnosed that my neurons were hyperactive on the opposite side of the tinnitus, and that I had hearing loss in the right ear, exactly where the tinnitus is located. Professor Dirk De Ridder also found intracranial pressure and pressure in the right ear. He directed me to an endocrinologist.

But because of their constant harassment — them and the doctor’s wife — who kept calling and harming me with every doctor I saw, the doctors blocked me. In Antwerp they finally told me: “We will no longer help you, we will no longer treat you, go somewhere else.” The professor refused to complete the diagnosis and the follow-up was stopped.

The doctor even called me at home to insult me. He was taking revenge because I had said that Prozac had destroyed me. In 1994 they had prescribed me Prozac even though I already had eosinophilic asthma, tachycardia and diabetes. They had sent me to psychiatry.

I had to wait for years before I could get any care somewhere. During that time my wife cheated on me with her boss while I was floxed and poisoned. She did it twice. I was floxed twice, she betrayed me twice, then she left and left me with debts. I was four thousand euros in the red when she left.

I was never able to really rebuild myself, because the doctors never stopped attacking me.

That is what they did.
They did not help me.
They destroyed me more. and more



How many times did they call me a softy, a pussy, tell me I was exaggerating, that I was having panic attacks, that I was hyperventilating? How many times did the female nurses and caregivers, especially in the emergency department, say things like “You men are all pussies” and other humiliating remarks?

These people insulted and humiliated me over and over again. It is unbelievable.

And then on television you constantly see reports about patients attacking doctors, patients attacking caregivers, patients being the problem. Meanwhile these people cause us so much harm. They are complete hypocrites.


My American floxie friends,

Remember one thing The Netherlands where i life not my country (i am Proud Sicilian Italian)

The beautiful image, the propaganda of a civilized, caring country that looks after its people is completely false. It is pure propaganda. They place themselves at the top of the statistics, but they are hypocritical liars. The care is disgusting.

In my city, I am telling you, they are not even capable of measuring tinnitus. Before my consultation with the ear doctor, I asked the receptionist at the desk: “Can you measure tinnitus? Are you able to measure tinnitus?” She started laughing, “hahaha,” and said: “No, it is impossible to measure tinnitus.”

That is completely wrong. It is perfectly possible to measure tinnitus. But in my city they are idiots, completely incapable.

My Story – Robert Montez

Date: 10/01/12

My name is Robert Montez. I am 17 years old. Before this happened, I was a very healthy teenager. I was highly involved in school, maintained excellent grades, and was on track for an early graduation. My plan was to enter a five-year nursing program after finishing high school.

I have always had a deep passion for music and art. Growing up surrounded by many genres of music, I felt fortunate to experience such diversity and set goals of becoming a musician. I learned to sing, play guitar and bass, and music became an essential part of my daily life. Eventually, it inspired me to pursue plans of forming a band.

Aside from school and my hobbies, I had been in a four-year relationship with my high school sweetheart, Alycia. This experience has affected her deeply as well. We spent much of our relationship discussing our future plans and goals after high school. She was very important to me, and this illness has devastated many of the dreams we had together. It struck at what should have been one of the happiest periods of my life, just as all my plans were about to become reality.

I often think about how my life seemed to end just as it was beginning.

On May 25, 2012, my life changed forever. One morning while bathing, I discovered a lump in my testicle. Concerned because cancer runs in my father's side of the family and because I was experiencing severe pain, I quickly scheduled an appointment with my doctor.

After examining me, my doctor ruled out cancer and diagnosed the problem as an epididymal cyst. He then prescribed Ciprofloxacin (Cipro) 500 mg, twice daily for ten days.

That same day, as I was beginning my summer break from school, I picked up the prescription and went home. I only took two pills before realizing that something was terribly wrong.

While lying on my bed, I suddenly noticed an unusual sensation in both Achilles tendons. It felt as though all the nutrients had been drained from them, leaving them brittle and weak. When I tried to walk, it felt as if they might snap beneath me.

Soon afterward, I experienced an overwhelming sensation that every ounce of life had been sucked from my body, accompanied by an intense panic attack. I did not feel like myself. The world around me seemed strange, unreal, and dreamlike. It was terrifying.

During the following days, I felt extremely weak, flu-like, frightened, and helpless. After reading the medication leaflet more carefully, I discovered some of the listed side effects. I immediately began searching online for information about Cipro side effects and was horrified by what I found. To this day, it still feels like a nightmare from which I have never fully awakened.

Symptoms I Experienced After Taking Cipro

• Severe head pressure
• Tendonosis and tendonitis in both Achilles tendons
• Partial hearing loss in the right ear
• Tinnitus
• Tendonitis in both hands
• Damage to multiple tendons throughout the body
• Hundreds of eye floaters of various shapes and sizes
• Disturbances in smell perception
• Dental problems
• Arthritis-like pain in knees, hands, and wrists
• Premature skin aging
• Poor wound healing
• Brittle nails
• Severe constipation
• Frequent urination
• Extreme anxiety and panic attacks
• Depersonalization and feelings of unreality
• Suicidal thoughts
• Depression
• Frequent crying spells
• Feelings of emptiness
• Severe mood swings
• Peripheral neuropathy affecting multiple limbs
• Severe nerve pain, especially in the legs, knees, and feet
• Chronic fatigue

At the time of writing, I am four months into my recovery after being floxed. My symptoms come in cycles, varying greatly in intensity and duration. Around six of these symptoms affect me daily. Some days are manageable, while others are extremely difficult. Certain weeks bring intense flare-ups.

Mentally, I feel more normal than I did during the early stages, but I still do not feel like myself. Pain in my legs often makes walking difficult, and both Achilles tendons continue to trouble me, particularly the left one. The nerve pain is unusual because it constantly changes location.

Overall, I do feel better in some ways, although in other ways I sometimes feel worse than I did earlier. Recovery has been a constant cycle of progress and setbacks, much like many other floxed individuals describe.

I have tried a variety of approaches recommended by other sufferers, including:

• Whey protein
• Magnesium supplements
• Vitamin C
• Hot Epsom salt baths
• Vitamins A and D
• Cellfood
• Lemon water
• Apple cider vinegar
• Reverse osmosis water
• A healthy diet whenever possible

Sometimes it is difficult to tell whether I am moving forward or backward in recovery because of the dramatic ups and downs. However, I understand that everyone heals differently, and despite being far from my old self, I am grateful that I have made some improvements during these four months.

Knowing that there are many others going through similar experiences saddens me deeply, but it also gives me comfort because it reminds me that I am not alone.

I know I have a long road ahead, as many of us do. I believe that time plays a major role in recovery. I am still frightened about what the future may hold, but I continue to live, hope, and pray every day for healing.

If there are any other young floxies who can relate, please share your story. In fact, anyone is welcome to share. I believe that by standing together and raising awareness, we can help prevent this terrible illness from happening to others.

~ Peace & Love ~
Robert Montez

I Only Took Two Pills of Cipro – Robert Montez, 17 years old, From Healthy Teen to Floxie in 48 Hours – Robert’s Testimony (2012)

Floxie Testimony

I Only Took Two Pills of Cipro – Robert Montez, 17 years old

Written 1 October 2012 · 4 months after being floxed

Before this I was a very healthy teen. I was very involved in school, always keeping my grades high and was on track for an early graduation. I was planning on getting into a 5-year nursing program after finishing high school. I have also always had a big passion for music and art since I was very little. Growing up around many genres of music, I always felt very blessed to have heard them and set forth goals to become a musician. Having learned how to sing, play guitar and bass, music became a part of my everyday life and soon inspired me to want to form a band.

Aside from school and my hobbies, I have been involved in a 4-year relationship with my high school sweetheart Alycia, who this has very much affected as well. We spent much of our relationship being very committed, discussing after-high-school plans and goals. Being so important to me, this has devastated much of my plans and dreams, striking me at the most joyous time of my life — the time when all my plans were to be set into action. I often think about how my life has ended as soon as it started.

On May 25, 2012 my life was forever changed.

One morning while bathing I discovered a testicular lump. Soon after I scheduled an appointment with my doctor. I was very alarmed because cancer runs in my father’s side of the family and I was in an extreme amount of pain. After a visit with my doctor, he ruled it out as being an epididymal cyst and was quick to prescribe me a round of Cipro 500 mg twice a day for 10 days.

That same day I was starting my summer break out of school. I picked up my prescription and headed home. I only took two of those poison pills!!!

I quickly noticed something was wrong. I did not know what hit me at all. I was lying on the bed when I suddenly noticed a very odd sensation in both my Achilles tendons, as if all the nutrients had been sucked out of them and they became extremely brittle and weak. I tried to walk and felt as if they were going to snap right beneath me. Then followed a horrible feeling of every ounce of life being sucked out of my body, with a very intense panic attack. I was lost on how to describe how I felt next. I felt like I was not myself. I felt like the world around me was different and dream-like — but this was terrifying.

For the following days I was feeling very flu-like and very weak, and very scared of everything around me, like a helpless animal. After I read the package a bit more I came across some of the mentioned side effects. I very quickly started a Google search on Cipro side effects and was extremely horrified by everything I read. I was very scared and to this day feel like this is a nightmare that I have not been able to awake from or accept.

A list of all my side effects from this antibiotic:

I am 4 months out from my initial floxing and I have many cycles of my symptoms. All vary in duration and length, but about 6 or so of the ones I mentioned I have on a daily basis. Some days go okay and others not so smooth, with some weeks them peaking in intensity. Mentally I feel more normal than early floxing but still not myself. I experience much pain in my legs, making it hard to walk sometimes. Both Achilles are still a bother, with my left still being acute. Nerve pains are very strange because they seem to shift to different locations.

Overall I do feel better in some ways and sometimes worse in others than early on. This really is a back-and-forth thing, like many other floxed people have described. I am trying certain suggestions from other sufferers, which I change up: whey protein, magnesium supplements, vitamin C, hot Epsom salt baths, vitamins A & D, Cellfood, lemon water, apple cider vinegar, reverse osmosis water. I try to eat as healthy as I can, but it’s sort of hard when you have to rely on your mother and money has to stretch.

At times I don’t know if I have gone back in time in recovery or forward. It’s very hard to tell with all the major ups and downs. But I know we all heal to our own degree, and I do feel thankful that at 4 months — although nowhere near my normal old self — I have made some improvement.

Knowing that there are many like myself highly saddens me, but at the same time offers comfort that I’m not alone. I have definitely a long road ahead of me, as do we all. But I believe time is a big factor in our recovery. I am still very scared about the future but must keep on living, hoping and praying every day for recovery.

Please, if any other young floxies can relate, share your story — or anyone, it does not matter. I believe as long as we all stick together we can prevent this horrible illness from happening to anyone else.

~ Peace & Love ~
Robert

Original testimony written by Robert Montez, 17 years old, four months after being floxed by only two tablets of Ciprofloxacin 500 mg in May 2012.
Shared here to keep the voices of young floxies visible.

Kate ¡Destruida!

KATE 

https://www.youtube.com/watch?v=9WOjOnau7MQ 

https://www.youtube.com/@antibioticostoxicos

https://destruida-los-restos.blogspot.com/

Kate Before FLOX
https://destruida-los-restos.blogspot.com/p/kate-alive-before-quintoxication.html

Oliver Newell., A LIFE TAKEN BY CIPRO

 

 **A LIFE TAKEN BY CIPRO**  

**Oliver Newell & Wayne Geist – Two Lives, One Tragic Pattern**

### OLIVER NEWELL  

**Died September 21, 2012**

**IMPORTANT ALERT!**  

Be careful with antibiotics like CIPRO for treatment of infections.  

CIPRO and similar drugs may cause Fluoroquinolone Toxicity.  

It made Oliver Newell suffer terribly for **9 months** and eventually may have contributed to his death.

**FLUOROQUINOLONE TOXICITY**  

These risks are often not made obvious.

**PLEASE SHARE**  

this broadly in your network as a public service to raise awareness.

---

**Donald Mabrey 05/05/2011**  

***Rest in Peace***

“This is one thing I told myself I would do this year. I am going to tell the story of how Cipro changed my Daddy’s life.  

My Dad lived with me during the last years of his life after Mom passed away. He dealt with chronic bladder infections for over 40 years.  

Doctors could never figure out the cause until he was diagnosed with cancer at stage 4 – a rare Urachal cancer.  

He took Cipro (250 mg) for ten years which kept his bladder infections under control – sometimes he had to have Cipro in IV’s.  

A few months later Dad said the doctor took him off Cipro and that is when he went downhill.  

**By the time I figured out what happened to me it was too late for my Dad – he was already a full-blown Floxie.**”

---

### WAYNE BERNARD GEIST – MARCH 14, 2011  

**A PREVENTABLE DEATH**

**WHAT HAPPENED?**  

- Wayne Geist had a **SEVERE ALLERGY** to Levaquin (previous visit caused peripheral neuropathy & loss of use of his legs for 3 months).  

- His allergy was clearly noted on his hospital records and wristband.  

- Despite this, he was given the **MAXIMUM IV dose** of Levaquin.  

- No less than **THREE** opportunities were missed to prevent this deadly mistake (doctor, pharmacist, nurse).

**Timeline:**  

- **FEB 24** – Admitted to Lodi Memorial Hospital. Allergy to Levaquin noted.  

- **FEB 26** – Given **MAXIMUM IV dose** of Levaquin despite allergy.  

- **LESS THAN 3 HOURS LATER** – Breathing became increasingly labored. Transferred to ICU and placed on a ventilator.  

- **MARCH 14** – Died after 16 days in the hospital.

A husband, a father, a loved one – gone because warnings were ignored. This could have been prevented.

**THE LAWSUIT CLAIMS**  

- Hospital knew from a previous visit that Levaquin had caused a serious reaction.  

- Negligence & negligent credentialing led to his death.  

- Seeking unspecified damages.

“Was there a compelling reason to use Levaquin that overrode the risk of an adverse reaction?”  

— Pharmacy Expert

---

**FLUOROQUINOLONES (Like CIPRO & LEVAQUIN) CAN CAUSE:**  

- Tendon rupture  

- Peripheral neuropathy  

- CNS effects  

- Muscle & joint damage  

- And more...

**RISKS ARE REAL. WARNINGS MATTER. LIVES DEPEND ON IT.**

**LEARN. SHARE. SAVE LIVES.**  

Educate yourself and others about the real risks of fluoroquinolone antibiotics.

**FQ100 FOUNDATION**  

Fighting for recognition, research, and protections for FQAD survivors.  

www.fq100.org

**MY QUIN STORY**  

Evidence-based education and resources about fluoroquinolone toxicity.  

www.myquinstory.org

Remember Oliver.  

Remember Wayne.  

**NEVER IGNORE THE RISKS.**

---

**Compiled by Teri Koko** – FQ Patient Advocate since 2013  

Design & layout created with AI assistance.

---

### Concrete summary of what happened

**Oliver Newell (died 21 September 2012)**  

He was given Cipro (and similar fluoroquinolones). He suffered severe fluoroquinolone toxicity for nine months. The toxicity is believed to have contributed to his death. The infographic presents him as a clear example of how these drugs can cause lasting, sometimes fatal harm even when used for ordinary infections.

**Donald Mabrey’s father (story shared 5 May 2011)**  

He had chronic bladder infections for more than 40 years. Doctors never found the underlying cause until he was diagnosed with stage-4 urachal cancer. For ten years he was kept on Cipro 250 mg (sometimes intravenously). When the doctor finally stopped the Cipro, his condition deteriorated rapidly. By the time his son understood what fluoroquinolone toxicity (“Floxie”) was, it was too late — the father was already severely affected.

**Wayne Bernard Geist (died 14 March 2011)**  

This is described as a completely preventable death.  

- He already had a documented severe allergy to Levaquin: a previous exposure had caused peripheral neuropathy and loss of use of his legs for three months.  

- The allergy was clearly written in his hospital chart and on his wristband.  

- On 24 February he was admitted to Lodi Memorial Hospital; the allergy was noted.  

- On 26 February he was nevertheless given the maximum intravenous dose of Levaquin.  

- Within less than three hours his breathing became severely labored; he was transferred to ICU and put on a ventilator.  

- He died on 14 March after 16 days in hospital.  

A lawsuit claimed the hospital knew about the previous serious reaction, that negligence (and negligent credentialing) caused his death, and that three separate opportunities (doctor, pharmacist, nurse) to stop the drug were missed. A pharmacy expert asked whether there was any compelling reason to give Levaquin that justified overriding the known risk of an adverse reaction.

The overall message of the poster is that fluoroquinolone antibiotics (Cipro, Levaquin and similar drugs) can cause serious, permanent, and sometimes fatal toxicity — tendon rupture, peripheral neuropathy, central-nervous-system effects, muscle and joint damage, and more — and that these risks are often not made clear enough to patients or even to medical staff. The cases of Oliver Newell and Wayne Geist are presented as concrete illustrations of how ignoring or underestimating these risks can cost lives.

Floxed Levaquin - Bobby Caldwell, the iconic singer _ What You Won't Do for Love

Bobby Caldwell, the iconic singer best known for hits like "What You Won't Do for Love," "Next Time I Fall," "My Flame," and "Open Your Eyes," was enjoying life with his wife, Mary, until he visited an urgent care center for a simple head cold. He was prescribed an antibiotic called Levaquin. Within a few days, he lost the ability to walk. Not long after, he passed away. The tragedy of Bobby and Mary Caldwell needs to be shared so others do not suffer from "Bobby Caldwell syndrome"—bilateral Achilles tendon rupture and severe toxicity caused by fluoroquinolone antibiotics.#bobbycaldwell #fluoroquinolonetoxicity #health #antibiotics #medicine

 https://www.facebook.com/reel/1703566197367507

: LEVAQUIN • FLUOROQUINOLONE TOXICITY • SPINAL CSF LEAKS

 

MEET KAREN SHETTLER PADDOCK

Karen’s published journal tells the powerful truth of what she endured after being poisoned by the fluoroquinolone antibiotic

Levaquin® (levofloxacin). Her story includes fluoroquinolone toxicity, systemic tendinitis, chronic pain, intracranial hypotension,

and spinal CSF leaks.

• Saw 35 doctors before a diagnosis of spinal CSF leak in 2012.

• Endured numerous procedures and extraordinary pain.

• Died on August 7, 2013.

“There is nothing wrong with you. You are just doing this to get attention or pain pills.”

— Words Karen heard far too often.

KAREN’S JOURNAL

Karen’s Journal of CSF Leak Headaches and Chronic Pain

How Intracranial Hypotension and the Fluoroquinolone Antibiotic Levaquin® (Levofloxacin) Killed Me

by the late Karen Shettler Paddock & Robert Paddock

Bob preserved her words — more than 9,000 journal entries, diaries and emails — and turned them into a book so others could

benefit from her experiences. He receives no money from sales; 100% of royalties go to the Spinal CSF Leak Foundation.

KAREN’S JOURNEY — A CHRONOLOGY OF EVENTS

October 1989 Car Accident

Karen was in a serious car accident. Headaches, neck pain and other symptoms began in this period.

2004 Levaquin® (Levofloxacin)

Karen was prescribed Levaquin, a fluoroquinolone antibiotic. According to Bob, symptoms they associated with the

fluoroquinolone exposure emerged approximately six months later.

2004 and Beyond A Long, Difficult Road

Years passed before they understood the connection to the antibiotic: Fluoroquinolone toxicity • Systemic tendinitis •

Intracranial hypotension • Chronic pain • Life-changing disability

2012 Spinal CSF Leak Diagnosis

After being evaluated by 35 doctors, Karen received a diagnosis of a possible spinal CSF leak.

August 7, 2013 Karen Passed Away

THE CONNECTION THAT DESERVES SERIOUS ATTENTION

63 PEOPLE

Bob Paddock has now heard directly from 63 people who report that their own CSF leak began after taking a

fluoroquinolone antibiotic.

• Karen’s published story explicitly describes fluoroquinolone antibiotic poisoning from Levaquin® (levofloxacin) and systemic

tendinitis as part of her medical history.

• Bob has spoken about the FQ–CSF leak connection within the CSF leak community, including presenting his observations

at the first CSF Leak conference. This brought the issue to the attention of many physicians who specialize in CSF leaks.

• Fluoroquinolones are known to cause serious connective tissue injuries, including tendinitis and tendon rupture. The spinal

dura is connective tissue. Connective tissue weakness is a recognized risk factor for spontaneous CSF leaks.

• Sixty-three patient reports should not be ignored. The FQ–CSF leak connection deserves serious attention, careful

documentation and dedicated scientific research.

THERE ARE THREE WAYS YOU CAN HELP

1. Donate Directly

Please consider supporting the Spinal CSF Leak Foundation. Donations help fund research, education, awareness, and support

for people whose lives are affected by spinal CSF leaks.

Donate here: spinalcsfleak.org/donate

2. Buy Karen’s Book

If you would like to learn much more about Karen’s experience in her own words, consider purchasing her book. Bob Paddock

receives NO MONEY from sales of Karen’s book — 100% of the royalties from the purple cover book (paperback or Kindle) go to

the Spinal CSF Leak Foundation.

Available on Amazon and Barnes & Noble (also in Kindle format).

3. Read Karen & Bob’s Story

Learn more about Karen and Bob’s journey and the mission of the Foundation:

spinalcsfleak.org/when-pain-is-relentless

KAREN LEFT BEHIND HER WORDS. BOB MADE SURE THEY WEREN’T LOST.

NOW WE CAN HELP MAKE SURE THEY’RE HEARD.

Read. Donate. Purchase the book. Share. Awareness may help the next person find an answer sooner.

SPINAL CSF LEAK FOUNDATION — Hope. Help. Healing.

https://www.facebook.com/reel/26685831937760973

https://www.facebook.com/reel/26685831937760973 

 

This is a Reel from the Facebook page “Fluoroquinolonas Alerta”.

In the video, Dr. Luis Alfredo Pérez (also known as Dr. Luis Pérez) discusses the case of Talia Smith (sometimes spelled Thalia), an American woman from Massachusetts.

Who is Talia Smith?

She is a woman who, in April 2021, took only 3 tablets of ciprofloxacin (Cipro) for a simple urinary tract infection. Until then, she was healthy, active, and the primary caregiver for her husband (a former Marine who became a quadriplegic).

After those few pills, she developed severe fluoroquinolone toxicity (floxing):

• She could no longer walk

• Intense neuropathic pain

• Massive weight loss (down to about 65 pounds / ~30 kg)

• She ended up in palliative/hospice care

• Permanent disability

Her story has been widely covered in the media (People Magazine, NewsNation, The Sun, etc.).

Who is Dr. Luis Alfredo Pérez?

He is a Spanish-speaking doctor who creates medical education content, particularly on TikTok under the account @conocimientoencapsulas. He comments on cases of fluoroquinolone toxicity, such as Talia Smith’s, to raise awareness about the risks of these antibiotics (Cipro, levofloxacin, etc.).

The page Fluoroquinolonas Alerta is an awareness/advocacy page about the dangers of fluoroquinolones.

“Destroyed by Fluoroquinolones: Rafał Habram’s Fight for Survival”

Rafał Habram. LoveU ❤️ BIG UP! 🙌 😘 😘

From 2020 to 2023, I suffered from chronic sinusitis. The only medication that did not help was ciprofloxacin.

I was hospitalized for nearly three weeks, lifting my head only to eat and go to the toilet. I was so weak that I could not even go to the bathroom normally. I also had a high fever and did not even feel the needle during the injection. Before the injection, my whole body felt strange, and I did not even feel the needle.

I left the hospital very discouraged, thinking that time would fix everything. I took the prescribed medications and did psychotherapy. Unfortunately, it got worse, with no improvement at all. I saw many doctors who noticed nothing, only increasing the doses of gabapentin from three times two hundred to three times six hundred milligrams.

I sought help through osteopathy and neurological rehabilitation. Unfortunately, it got even worse. My body started hurting more, every touch felt like a burn, electrical paresthesias. After a while, I had stomach pains after taking the medications, and a sensation of electrical energy transmission from the head to the feet.

The search for a way out ended with MRIs, EMGs and other examinations. None of them helped, and the situation even worsened because of this electrical energy transmission.

I decided to go to a clinic in Germany. They made an additional diagnosis of small fiber polyneuropathy and performed a skin biopsy. I was given a Metypred infusion, and the problem got worse. The treatment was supposed to last three days, one thousand milliliters per day. After the first dose, I refused the rest, which made things even worse.

I felt terrible, my whole body hot, as if I could feel something inside. Burning and itching with red, painful fingers, and cramps that have accompanied me ever since. Burning on the face and almost the entire body. I developed terrible paresthesia of the fingers, feet and whole body, which did not exist before. Blood pressure is very high and muscle cramps are intensifying.

I stopped all medications and took vitamins C, B and D. Fighting for my life, I managed to get to the SOR at the UCK in Katowice, where I was admitted to neurology. A complete analysis was done, and I left in a wheelchair.

Today I know that this is the work of fluoroquinolone medications.

Since I started feeling this bad state, it has lasted six months, and my body has become more and more flabby. I have already lost my mind and remained unconscious. My leg has become more sensitive, and of a strong person like me, who was still there last June, nothing remains. I am systematically losing weight despite having an appetite, and new headaches appear, which confirms the effect of the medications.

Unfortunately, I know that my situation is very difficult, and I need a little help to survive a little longer. I have a small child who does not see what is happening to his father, terrified, who sees how I am becoming flabby. I have terrible itching, the skin has peeled off, and I feel terribly ill.

I wrote this in April of this year... today it is already a complete tragedy, he is no longer really alive. My skin, my bones, the constant pain, and my once fit body.

I really need help. I was recently in the hospital in Katowice Ochojec, in neurology, only to discover that they considered me “mentally ill”... They just did a blood test and an MRI or CT scan, and I was terrified because I am more and more destroyed after each stay. Now I am in the hospital in Łódź, where it is even worse. The doctors treating me are FQAD doctors: a Pole from Poznań, Doctor Michalak, and currently Doctor Stefan Piper from Germany.

Unfortunately, the medications have not changed the situation, which is becoming more difficult every day. My body does not accept supplements well. Along the way, I had many homeopaths and naturopaths who pushed me to take more supplements and medications. Once again, it is useless.

Today, every day is a struggle, and such a loss of muscle mass that I try not to move. Unfortunately, every activity causes muscle mass loss and nerve pain or a body cramp. I am on the verge of exhaustion because I no longer see any hope. I have the feeling that my body is dying, and I know that it is no longer fighting.

I have thought about suicide every day because of my condition, and I am waiting, unfortunately, for the courage, because no one can survive such degradation of the body to the end.

I ran a business, I had a beautiful family life before the illness. I lost everything!!!

Please help me and show the world what fluoroquinolone group antibiotics do.

Rafał.

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Rafał Habram. LoveU ❤️ BIG UP! 🙌 😘 😘

Van 2020 tot 2023 leed ik aan chronische sinusitis. Het enige medicijn dat niet hielp, was ciprofloxacine.

Ik lag bijna drie weken in het ziekenhuis en tilde mijn hoofd alleen op om te eten en naar het toilet te gaan. Ik was zo zwak dat ik niet eens normaal naar de badkamer kon. Ik had ook hoge koorts en voelde de naald bij de injectie niet eens. Voor de prik voelde mijn hele lichaam raar aan, en ik voelde de naald niet eens.

Ik verliet het ziekenhuis erg ontmoedigd, denkend dat de tijd alles wel zou regelen. Ik nam de voorgeschreven medicijnen en deed psychotherapie. Helaas werd het erger, zonder enige verbetering. Ik zag veel artsen die niets opmerkten en alleen de doseringen van gabapentine verhoogden, van drie keer tweehonderd naar drie keer zeshonderd milligram.

Ik zocht hulp bij osteopathie en neurologische revalidatie. Helaas werd het nog erger. Mijn lichaam begon meer pijn te doen, elk contact voelde als een brandwond, elektrische paresthesieën. Na een tijdje kreeg ik maagpijn na het innemen van de medicijnen, en een gevoel van elektrische energieoverdracht van het hoofd naar de voeten.

De zoektocht naar een uitweg eindigde met MRI’s, EMG’s en andere onderzoeken. Geen van alle hielp, en de situatie werd zelfs erger door deze elektrische energieoverdracht.

Ik besloot naar een kliniek in Duitsland te gaan. Ze stelden een aanvullende diagnose van polyneuropathie van de kleine vezels en deden een huidbiopsie. Ik kreeg een infuus met Metypred, en het probleem werd erger. De behandeling moest drie dagen duren, duizend milliliter per dag. Na de eerste dosis weigerde ik de rest, wat de zaken nog erger maakte.

Ik voelde me vreselijk, mijn hele lichaam heet, alsof ik iets van binnen voelde. Brandingen en jeuk met rode, pijnlijke vingers, en krampen die me sindsdien altijd vergezellen. Branding in het gezicht en bijna over het hele lichaam. Ik ontwikkelde een vreselijke paresthesie van de vingers, voeten en het hele lichaam, die er eerder niet was. De bloeddruk is erg hoog en de spierkrampen worden heviger.

Ik stopte met alle medicijnen en nam vitamine C, B en D. Al vechtend voor mijn leven lukte het me om bij de SOR van het UCK in Katowice te komen, waar ik werd opgenomen op de neurologie. Er werd een volledige analyse gedaan, en ik ging weg in een rolstoel.

Vandaag weet ik dat dit het werk is van de fluorochinolonen-medicijnen.

Sinds ik dit slechte toestand begon te voelen, duurt het al zes maanden, en mijn lichaam is steeds slapper geworden. Ik ben al mijn verstand kwijtgeraakt en bewusteloos geweest. Mijn been is gevoeliger geworden, en van een sterke persoon zoals ik, die vorige juni nog bestond, blijft niets over. Ik val systematisch af ondanks eetlust, en er komen nieuwe hoofdpijnen bij, wat het effect van de medicijnen bevestigt.

Helaas weet ik dat mijn situatie erg moeilijk is, en ik heb een beetje hulp nodig om nog iets langer te overleven. Ik heb een klein kind dat niet ziet wat er met zijn vader gebeurt, doodsbang, dat ziet hoe ik slap word. Ik heb vreselijke jeuk, de huid is losgelaten, en ik voel me vreselijk ziek.

Ik heb dit in april van dit jaar geschreven… vandaag is het al een complete tragedie, hij is niet echt meer in leven. Mijn huid, mijn botten, de constante pijn, en mijn ooit fitte lichaam.

Ik heb echt hulp nodig. Ik was onlangs in het ziekenhuis in Katowice Ochojec, op de neurologie, om te ontdekken dat ze me als « geestelijk ziek » beschouwden… Ze deden alleen een bloedonderzoek en een MRI of CT-scan, en ik was doodsbang omdat ik na elk verblijf steeds meer vernietigd raak. Nu ben ik in het ziekenhuis in Łódź, waar het nog erger is. De artsen die me behandelen zijn FQAD-artsen: een Pool uit Poznań, dokter Michalak, en momenteel dokter Stefan Piper uit Duitsland.

Helaas hebben de medicijnen de situatie niet veranderd, die elke dag moeilijker wordt. Mijn lichaam accepteert supplementen niet goed. Onderweg heb ik veel homeopaten en natuurgenezers gehad die me aanspoorden om meer supplementen en medicijnen te nemen. Opnieuw is het nutteloos.

Vandaag is elke dag een strijd, en zo’n verlies van spiermassa dat ik probeer niet te bewegen. Helaas veroorzaakt elke activiteit spiermassaverlies en zenuwpijn of een kramp van het lichaam. Ik sta op de rand van uitputting omdat ik geen hoop meer zie. Ik heb het gevoel dat mijn lichaam sterft, en ik weet dat het niet meer vecht.

Ik heb elke dag aan zelfmoord gedacht vanwege mijn toestand, en ik wacht, helaas, op de moed, omdat niemand zo’n aftakeling van het lichaam tot het einde kan overleven.

Ik leidde een bedrijf, ik had een mooi gezinsleven vóór de ziekte. Ik heb alles verloren!!!

Alstublieft, help me en laat de wereld zien wat de antibiotica uit de groep van de fluorochinolonen doen.

Rafał.

---------------------------------------------------------------------------------

Rafał Habram. LoveU ❤️ BIG UP! 🙌 😘 😘

De 2020 à 2023, j'ai souffert de sinusite chronique. Le seul médicament qui n'a pas aidé, c'était la ciprofloxacine.

J'ai été hospitalisé près de trois semaines, ne levant la tête que pour manger et aller aux toilettes. J'étais si faible que je ne pouvais même pas aller à la salle de bain normalement. J'avais aussi une forte fièvre et je ne sentais même pas l'aiguille pendant l'injection. Avant la piqûre, tout mon corps se sentait bizarre, et je ne sentais même pas l'aiguille.

Je suis sorti de l'hôpital très découragé, pensant que le temps arrangerait tout. J'ai pris les médicaments prescrits et fait de la psychothérapie. Malheureusement, ça s'est aggravé, sans aucune amélioration. J'ai vu plein de médecins qui n'ont rien remarqué, augmentant juste les doses de gabapentine, de trois fois deux cents à trois fois six cents milligrammes.

J'ai cherché de l'aide en ostéopathie et rééducation neurologique. Malheureusement, ça s'est encore aggravé. Mon corps a commencé à faire plus mal, chaque contact était comme une brûlure, des paresthésies électriques. Après un moment, j'ai eu des douleurs d'estomac après avoir pris les médicaments, et une sensation de transmission d'énergie électrique de la tête aux pieds.

La recherche d'une issue s'est terminée avec des IRM, des EMG et d'autres examens. Aucun n'a aidé, et la situation a même empiré à cause de cette transmission électrique d'énergie.

J'ai décidé d'aller dans une clinique en Allemagne. Ils ont posé un diagnostic supplémentaire de polyneuropathie des petites fibres, et fait une biopsie cutanée. On m'a donné une perfusion de Metypred, et le problème s'est aggravé. Le traitement devait durer trois jours, mille millilitres par jour. Après la première dose, j'ai refusé le reste, ce qui a rendu les choses encore pires.

Je me sentais terrible, tout le corps chaud, comme si je sentais quelque chose à l'intérieur. Brûlures et démangeaisons avec les doigts rouges, douloureux, et des crampes qui m'accompagnent depuis toujours. Brûlure sur le visage et presque tout le corps. J'ai développé une terrible paresthésie des doigts, des pieds et de tout le corps, qui n'existait pas avant. La tension artérielle est très élevée et les crampes musculaires s'intensifient.

J'ai arrêté tous les médicaments et pris des vitamines C, B et D. En luttant pour ma vie, j'ai réussi à rejoindre le SOR à l'UCK de Katowice, où j'ai été admis en neurologie. On a fait une analyse complète, et je suis sorti en fauteuil roulant.

Aujourd'hui, je sais que c'est le travail des médicaments fluorochinolones.

Depuis que j'ai commencé à sentir ce mauvais état, ça dure six mois, et mon corps est devenu de plus en plus flasque. J'ai déjà perdu la tête et je suis resté sans conscience. Ma jambe est devenue plus sensible, et d'une personne forte comme moi, qui était encore là en juin dernier, il ne reste plus rien. Je perds du poids de façon systématique malgré l'appétit, et de nouveaux maux de tête apparaissent, ce qui confirme l'effet des médicaments.

Malheureusement, je sais que ma situation est très difficile, et j'ai besoin d'un peu d'aide pour survivre un peu plus longtemps. J'ai un petit enfant qui ne voit pas ce qui arrive à son père, terrorisé, qui voit comment je deviens flasque. J'ai des démangeaisons terribles, la peau s'est décollée, et je me sens terriblement malade.

Je l'ai écrit en avril de cette année... aujourd'hui c'est déjà une tragédie complète, il n'est plus vraiment vivant. Ma peau, mes os, la douleur constante, et mon corps autrefois en forme.

J'ai vraiment besoin d'aide. J'étais récemment à l'hôpital à Katowice Ochojec, en neurologie, pour découvrir qu'on me considérait « malade mental »... Ils ont fait juste une prise de sang et une IRM ou scanner, et j'étais terrifié parce que je suis de plus en plus détruit après chaque séjour. Maintenant je suis à l'hôpital à Łódź, où c'est encore pire. Les médecins qui me traitent sont des médecins FQAD : un Polonais de Poznań, le docteur Michalak, et actuellement le docteur Stefan Piper d'Allemagne.

Malheureusement, les médicaments n'ont pas changé la situation, qui devient chaque jour plus difficile. Mon corps n'accepte pas bien les compléments. Sur le chemin, j'ai eu beaucoup d'homéopathes et de naturopathes qui m'ont poussé à prendre plus de compléments et de médicaments. Une fois de plus, c'est inutile.

Aujourd'hui, chaque jour est une lutte, et une telle perte de masse musculaire que j'essaie de ne pas bouger. Malheureusement, chaque activité provoque une perte de masse musculaire et des douleurs nerveuses ou une crampe du corps. Je suis au bord de l'épuisement parce que je ne vois plus aucun espoir. J'ai l'impression que mon corps est en train de mourir, et je sais qu'il ne se bat plus.

J'ai pensé au suicide tous les jours à cause de ma condition, et j'attends, malheureusement, le courage, parce que personne ne peut survivre à une telle dégradation du corps jusqu'au bout.

J'ai dirigé une entreprise, j'avais une belle vie familiale avant la maladie. J'ai tout perdu !!!

S'il vous plaît, aidez-moi et montrez au monde ce que font les antibiotiques du groupe des fluorochinolones.

Rafał.

Most of the groups and linkages of the fluoroquinolones that are known 1

 
1

Liste des principaux groupes et ressources de soutien et d’activisme autour de la toxicité des fluoroquinolones (FQ / FQAD / floxies) dans le monde

Organisations et sites principaux

Fluoroquinolone Toxicity Study (États-Unis)

Site : https://fq100.org

Page listant les groupes de soutien : https://fq100.org/find-support

Association à but non lucratif qui finance des recherches indépendantes et centralise beaucoup de groupes de soutien.

Quintox Support UK (Royaume-Uni)

Site : https://www.quintoxsupport.co.uk

Email : quintoxuk@btinternet.com

Groupe très actif en advocacy, a participé à l’audition publique de l’EMA en 2018.

Canadian Quinolone Support Group (Canada)

Site : http://canquinsupport.weebly.com

Objectif : soutien, information et advocacy pour les victimes canadiennes.

Association Fluoroquinolones France (France)

Site : https://www.fluoroquinolones-france.fr

Association loi 1901 qui regroupe plusieurs centaines de victimes en France, anime un groupe Facebook fermé et milite pour une meilleure information et une prise en charge.

My Quin Story (États-Unis)

Site : https://www.myquinstory.info

Guide historique des groupes Facebook : https://www.myquinstory.info/guide-fluoroquinolone-facebook-groups-pages/

Groupes Facebook principaux (internationaux et généraux)

Fluoroquinolone Toxicity 24/7 Live Chat Group

https://www.facebook.com/groups/191063714251094

Fluoroquinolone Toxicity Worldwide Group

https://www.facebook.com/groups/1105499342800113/

Surviving Antibiotic Adverse Reactions Avelox, Cipro, Levaquin, Floxin

https://www.facebook.com/groups/261231253984443

Floxed Treatment – Healing Fluoroquinolone Toxicity

https://www.facebook.com/groups/floxedtreatment

FQAD Fluoroquinolone Associated Disability Public Group

https://www.facebook.com/groups/764618707017951

This is Floxed Up - Advocacy Group for Fluoroquinolone Toxicity

https://www.facebook.com/groups/3361898517305386

FQ Awareness and Education

https://www.facebook.com/groups/FQAwarenessAndEducation

Floxie Finder (pour se rencontrer localement)

https://www.facebook.com/groups/222676757897021

Floxie Hangout

https://www.facebook.com/groups/256123468063447

Fluoroquinolone Antibiotic Toxicity (page publique)

https://www.facebook.com/FluoroquinoloneToxicity

My Quin Story (page)

https://www.facebook.com/MyQuinStory

Groupes par pays ou région

Pays-Bas

Nederlands Fluorochinolonen Group

https://www.facebook.com/groups/997027542123215

Royaume-Uni

Quinolone Toxicity Support UK

https://www.facebook.com/groups/quinolonetoxicitysupportuk

France

Page Facebook associée à l’Association Fluoroquinolones France

https://www.facebook.com/avelox.oflocet.ciprofloxacine

Groupe fermé « Quinolones France » (accessible via l’association)

Allemagne

https://www.facebook.com/groups/658857264453649

https://www.facebook.com/profile.php?id=61581550875420

Espagne et Amérique latine

https://www.facebook.com/groups/682014232210462

https://www.facebook.com/groups/538719363903916

https://www.facebook.com/groups/1216430965156129

Brésil

https://www.facebook.com/groups/floxiesbrasil/

Canada 

https://www.facebook.com/groups/545585045494227

Australie

https://www.facebook.com/groups/1713944815557865

Belgique

https://www.facebook.com/groups/1243504816615565/

Finlande

https://www.facebook.com/groups/785081024892381

https://www.facebook.com/groups/1501745554023528

Hongrie

https://www.facebook.com/groups/1933770050270150

Pologne

https://www.facebook.com/groups/682014232210462 (partagé parfois avec d’autres)

Turquie

https://www.facebook.com/groups/973105337879706

Europe (général)

Groupe Fluoroquinolone Toxicity Victims in Europe (cité lors de l’audition EMA 2018)

États-Unis (régionaux)

New England Floxies

https://www.facebook.com/groups/123826181348026

Autres ressources et notes

Beaucoup de ces groupes sont privés ou semi-privés. Il faut généralement envoyer une demande d’adhésion et parfois répondre à quelques questions pour prouver que l’on est concerné.

La liste ci-dessus regroupe les groupes les plus visibles et actifs repérés en 2025-2026. De nouveaux groupes locaux apparaissent régulièrement. La page https://fq100.org/find-support reste l’une des meilleures sources pour mettre à jour cette liste.

Cette liste est destinée à être copiée telle quelle dans un blog ou un document.

2

List of the main support and advocacy groups and resources on fluoroquinolone toxicity (FQ / FQAD / floxies) worldwide

Main organizations and websites

Fluoroquinolone Toxicity Study (United States)

Website: https://fq100.org

Support groups page: https://fq100.org/find-support

Non-profit organization that funds independent research and centralizes many support groups.

Quintox Support UK (United Kingdom)

Website: https://www.quintoxsupport.co.uk

Email: quintoxuk@btinternet.com

Very active advocacy group that participated in the EMA public hearing in 2018.

Canadian Quinolone Support Group (Canada)

Website: http://canquinsupport.weebly.com

Goal: support, information and advocacy for Canadian victims.

Association Fluoroquinolones France (France)

Website: https://www.fluoroquinolones-france.fr

French non-profit association that brings together several hundred victims in France, runs a closed Facebook group and campaigns for better information and care.

My Quin Story (United States)

Website: https://www.myquinstory.info

Historical guide to Facebook groups: https://www.myquinstory.info/guide-fluoroquinolone-facebook-groups-pages/

Main Facebook groups (international and general)

Fluoroquinolone Toxicity 24/7 Live Chat Group

https://www.facebook.com/groups/191063714251094

Fluoroquinolone Toxicity Worldwide Group

https://www.facebook.com/groups/1105499342800113/

Surviving Antibiotic Adverse Reactions Avelox, Cipro, Levaquin, Floxin

https://www.facebook.com/groups/261231253984443

Floxed Treatment – Healing Fluoroquinolone Toxicity

https://www.facebook.com/groups/floxedtreatment

FQAD Fluoroquinolone Associated Disability Public Group

https://www.facebook.com/groups/764618707017951

This is Floxed Up - Advocacy Group for Fluoroquinolone Toxicity

https://www.facebook.com/groups/3361898517305386

FQ Awareness and Education

https://www.facebook.com/groups/FQAwarenessAndEducation

Floxie Finder (to meet locally)

https://www.facebook.com/groups/222676757897021

Floxie Hangout

https://www.facebook.com/groups/256123468063447

Fluoroquinolone Antibiotic Toxicity (public page)

https://www.facebook.com/FluoroquinoloneToxicity

My Quin Story (page)

https://www.facebook.com/MyQuinStory

Groups by country or region

Netherlands

Nederlands Fluorochinolonen Group

https://www.facebook.com/groups/997027542123215

United Kingdom

Quinolone Toxicity Support UK

https://www.facebook.com/groups/quinolonetoxicitysupportuk

France

Facebook page linked to Association Fluoroquinolones France

https://www.facebook.com/avelox.oflocet.ciprofloxacine

Closed group “Quinolones France” (accessible via the association)

Germany

https://www.facebook.com/groups/658857264453649

https://www.facebook.com/profile.php?id=61581550875420

Spain and Latin America

https://www.facebook.com/groups/682014232210462

https://www.facebook.com/groups/538719363903916

https://www.facebook.com/groups/1216430965156129

Brazil

https://www.facebook.com/groups/floxiesbrasil/

Canada

https://www.facebook.com/groups/545585045494227

Australia

https://www.facebook.com/groups/1713944815557865

Belgium

https://www.facebook.com/groups/1243504816615565/

Finland

https://www.facebook.com/groups/785081024892381

https://www.facebook.com/groups/1501745554023528

Hungary

https://www.facebook.com/groups/1933770050270150

Poland

https://www.facebook.com/groups/682014232210462 (sometimes shared with others)

Turkey

https://www.facebook.com/groups/973105337879706

Europe (general)

Fluoroquinolone Toxicity Victims in Europe group (mentioned during the 2018 EMA hearing)

United States (regional)

New England Floxies

https://www.facebook.com/groups/123826181348026

Other resources and notes

Many of these groups are private or semi-private. You usually need to send a membership request and sometimes answer a few questions to prove that you are affected.

The list above includes the most visible and active groups identified in 2025-2026. New local groups appear regularly. The page https://fq100.org/find-support remains one of the best sources to keep this list updated.

This list is intended to be copied as-is into a blog or document.

3

Elenco dei principali gruppi e risorse di sostegno e attivismo sulla tossicità dei fluorochinoloni (FQ / FQAD / floxies) nel mondo

Organizzazioni e siti principali

Fluoroquinolone Toxicity Study (Stati Uniti)

Sito: https://fq100.org

Pagina con l’elenco dei gruppi di sostegno: https://fq100.org/find-support

Associazione no-profit che finanzia ricerche indipendenti e centralizza molti gruppi di supporto.

Quintox Support UK (Regno Unito)

Sito: https://www.quintoxsupport.co.uk

Email: quintoxuk@btinternet.com

Gruppo molto attivo nell’advocacy, ha partecipato all’audizione pubblica dell’EMA nel 2018.

Canadian Quinolone Support Group (Canada)

Sito: http://canquinsupport.weebly.com

Obiettivo: sostegno, informazione e advocacy per le vittime canadesi.

Association Fluoroquinolones France (Francia)

Sito: https://www.fluoroquinolones-france.fr

Associazione francese che riunisce diverse centinaia di vittime in Francia, gestisce un gruppo Facebook chiuso e milita per una migliore informazione e presa in carico.

My Quin Story (Stati Uniti)

Sito: https://www.myquinstory.info

Guida storica ai gruppi Facebook: https://www.myquinstory.info/guide-fluoroquinolone-facebook-groups-pages/

Principali gruppi Facebook (internazionali e generali)

Fluoroquinolone Toxicity 24/7 Live Chat Group

https://www.facebook.com/groups/191063714251094

Fluoroquinolone Toxicity Worldwide Group

https://www.facebook.com/groups/1105499342800113/

Surviving Antibiotic Adverse Reactions Avelox, Cipro, Levaquin, Floxin

https://www.facebook.com/groups/261231253984443

Floxed Treatment – Healing Fluoroquinolone Toxicity

https://www.facebook.com/groups/floxedtreatment

FQAD Fluoroquinolone Associated Disability Public Group

https://www.facebook.com/groups/764618707017951

This is Floxed Up - Advocacy Group for Fluoroquinolone Toxicity

https://www.facebook.com/groups/3361898517305386

FQ Awareness and Education

https://www.facebook.com/groups/FQAwarenessAndEducation

Floxie Finder (per incontrarsi localmente)

https://www.facebook.com/groups/222676757897021

Floxie Hangout

https://www.facebook.com/groups/256123468063447

Fluoroquinolone Antibiotic Toxicity (pagina pubblica)

https://www.facebook.com/FluoroquinoloneToxicity

My Quin Story (pagina)

https://www.facebook.com/MyQuinStory

Gruppi per paese o regione

Paesi Bassi

Nederlands Fluorochinolonen Group

https://www.facebook.com/groups/997027542123215

Regno Unito

Quinolone Toxicity Support UK

https://www.facebook.com/groups/quinolonetoxicitysupportuk

Francia

Pagina Facebook collegata all’Association Fluoroquinolones France

https://www.facebook.com/avelox.oflocet.ciprofloxacine

Gruppo chiuso “Quinolones France” (accessibile tramite l’associazione)

Germania

https://www.facebook.com/groups/658857264453649

https://www.facebook.com/profile.php?id=61581550875420

Spagna e America Latina

https://www.facebook.com/groups/682014232210462

https://www.facebook.com/groups/538719363903916

https://www.facebook.com/groups/1216430965156129

Brasile

https://www.facebook.com/groups/floxiesbrasil/

Canada

https://www.facebook.com/groups/545585045494227

Australia

https://www.facebook.com/groups/1713944815557865

Belgio

https://www.facebook.com/groups/1243504816615565/

Finlandia

https://www.facebook.com/groups/785081024892381

https://www.facebook.com/groups/1501745554023528

Ungheria

https://www.facebook.com/groups/1933770050270150

Polonia

https://www.facebook.com/groups/682014232210462 (a volte condiviso con altri)

Turchia

https://www.facebook.com/groups/973105337879706

Europa (generale)

Gruppo Fluoroquinolone Toxicity Victims in Europe (citato durante l’audizione EMA 2018)

Stati Uniti (regionali)

New England Floxies

https://www.facebook.com/groups/123826181348026

Altre risorse e note

Molti di questi gruppi sono privati o semi-privati. Di solito è necessario inviare una richiesta di adesione e a volte rispondere ad alcune domande per dimostrare di essere interessati.

L’elenco sopra include i gruppi più visibili e attivi individuati nel 2025-2026. Nuovi gruppi locali appaiono regolarmente. La pagina https://fq100.org/find-support rimane una delle migliori fonti per aggiornare questo elenco.

Questo elenco è destinato a essere copiato così com’è in un blog o in un documento.

Robert C. “Bob” Grozier II

 Research conducted by Terry Koko Warrior Flox, pacifist activist

Robert C. “Bob” Grozier II, often known as Bobby Grozier, was an American from the Allentown–Whitehall area of Pennsylvania. Born around 1958–1959, he died on June 11, 2014, at the age of 55.

Before his illness, Bob lived a stable and productive life. He worked for approximately twenty years as a Senior Software Advisor at Guardian Life Insurance Company in Bethlehem, Pennsylvania. He was married and the father of a young daughter, Faith. Colleagues and friends knew him as a dedicated professional, devoted husband, and caring father.

In the early 2000s, Bob was prescribed fluoroquinolone antibiotics, including ciprofloxacin (Cipro), in combination with other medications for prostatitis. According to family members and fellow patients, he experienced a severe adverse reaction that profoundly changed the course of his life. Over time, he developed a range of debilitating symptoms that included neurological problems, severe anxiety and panic attacks, tinnitus, neuropathic pain, cognitive difficulties, and other chronic health complications. His condition eventually left him unable to continue working.

The consequences extended far beyond his health. He lost his career, his marriage ended, and many aspects of the life he had built were taken from him. Unable to live independently, he eventually moved in with his mother, while his daughter was cared for by other family members.

Rather than withdrawing completely from public life, Bob chose to become an advocate for others who believed they had suffered serious reactions to fluoroquinolone antibiotics. He became one of the earliest and most recognizable voices within the growing community of affected patients in the United States. Through the website fqvictims.org, personal testimonies, videos, and public outreach efforts, he worked tirelessly to raise awareness about the potential risks associated with these medications. He offered support to countless individuals searching for answers and sought greater recognition of their experiences by regulators, healthcare professionals, and the media.

His advocacy made him a respected figure among many people who felt their suffering had been overlooked. Even as his own health continued to deteriorate, he remained committed to helping others understand the challenges faced by those living with severe drug-related injuries.

Bob Grozier died on June 11, 2014, in the inpatient unit of Lehigh Valley Hospice in Allentown, Pennsylvania. His passing marked the end of a long and difficult struggle with illness. To many within the fluoroquinolone-injured community, however, his legacy did not end there. He is remembered as a compassionate advocate, a determined campaigner for patient awareness, and one of the pioneering voices who brought public attention to the experiences of fluoroquinolone victims.

The photographic collage that accompanies his story reflects this journey: a devoted family man and successful professional, a patient confronting devastating illness, an advocate fighting for recognition, and ultimately a man whose efforts left a lasting impact on countless others facing similar challenges.
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