1
Liste des principaux groupes et ressources de soutien et d’activisme autour de la toxicité des fluoroquinolones (FQ / FQAD / floxies) dans le monde
Organisations et sites principaux
Fluoroquinolone Toxicity Study (États-Unis)
Site : https://fq100.org
Page listant les groupes de soutien : https://fq100.org/find-support
Association à but non lucratif qui finance des recherches indépendantes et centralise beaucoup de groupes de soutien.
Quintox Support UK (Royaume-Uni)
Site : https://www.quintoxsupport.co.uk
Email : quintoxuk@btinternet.com
Groupe très actif en advocacy, a participé à l’audition publique de l’EMA en 2018.
Canadian Quinolone Support Group (Canada)
Site : http://canquinsupport.weebly.com
Objectif : soutien, information et advocacy pour les victimes canadiennes.
Association Fluoroquinolones France (France)
Site : https://www.fluoroquinolones-france.fr
Association loi 1901 qui regroupe plusieurs centaines de victimes en France, anime un groupe Facebook fermé et milite pour une meilleure information et une prise en charge.
My Quin Story (États-Unis)
Site : https://www.myquinstory.info
Guide historique des groupes Facebook : https://www.myquinstory.info/guide-fluoroquinolone-facebook-groups-pages/
Groupes Facebook principaux (internationaux et généraux)
Fluoroquinolone Toxicity 24/7 Live Chat Group
https://www.facebook.com/groups/191063714251094
Fluoroquinolone Toxicity Worldwide Group
https://www.facebook.com/groups/1105499342800113/
Surviving Antibiotic Adverse Reactions Avelox, Cipro, Levaquin, Floxin
https://www.facebook.com/groups/261231253984443
Floxed Treatment – Healing Fluoroquinolone Toxicity
https://www.facebook.com/groups/floxedtreatment
FQAD Fluoroquinolone Associated Disability Public Group
https://www.facebook.com/groups/764618707017951
This is Floxed Up - Advocacy Group for Fluoroquinolone Toxicity
https://www.facebook.com/groups/3361898517305386
FQ Awareness and Education
https://www.facebook.com/groups/FQAwarenessAndEducation
Floxie Finder (pour se rencontrer localement)
https://www.facebook.com/groups/222676757897021
Floxie Hangout
https://www.facebook.com/groups/256123468063447
Fluoroquinolone Antibiotic Toxicity (page publique)
https://www.facebook.com/FluoroquinoloneToxicity
My Quin Story (page)
https://www.facebook.com/MyQuinStory
Groupes par pays ou région
Pays-Bas
Nederlands Fluorochinolonen Group
https://www.facebook.com/groups/997027542123215
Royaume-Uni
Quinolone Toxicity Support UK
https://www.facebook.com/groups/quinolonetoxicitysupportuk
France
Page Facebook associée à l’Association Fluoroquinolones France
https://www.facebook.com/avelox.oflocet.ciprofloxacine
Groupe fermé « Quinolones France » (accessible via l’association)
Allemagne
https://www.facebook.com/groups/658857264453649
https://www.facebook.com/profile.php?id=61581550875420
Espagne et Amérique latine
https://www.facebook.com/groups/682014232210462
https://www.facebook.com/groups/538719363903916
https://www.facebook.com/groups/1216430965156129
https://www.facebook.com/groups/floxiesbrasil/
Canada
https://www.facebook.com/groups/545585045494227
Australie
https://www.facebook.com/groups/1713944815557865
Belgique
https://www.facebook.com/groups/1243504816615565/
Finlande
https://www.facebook.com/groups/785081024892381
https://www.facebook.com/groups/1501745554023528
Hongrie
https://www.facebook.com/groups/1933770050270150
Pologne
https://www.facebook.com/groups/682014232210462 (partagé parfois avec d’autres)
Turquie
https://www.facebook.com/groups/973105337879706
Europe (général)
Groupe Fluoroquinolone Toxicity Victims in Europe (cité lors de l’audition EMA 2018)
États-Unis (régionaux)
New England Floxies
https://www.facebook.com/groups/123826181348026
Autres ressources et notes
Beaucoup de ces groupes sont privés ou semi-privés. Il faut généralement envoyer une demande d’adhésion et parfois répondre à quelques questions pour prouver que l’on est concerné.
La liste ci-dessus regroupe les groupes les plus visibles et actifs repérés en 2025-2026. De nouveaux groupes locaux apparaissent régulièrement. La page https://fq100.org/find-support reste l’une des meilleures sources pour mettre à jour cette liste.
Cette liste est destinée à être copiée telle quelle dans un blog ou un document.
2
List of the main support and advocacy groups and resources on fluoroquinolone toxicity (FQ / FQAD / floxies) worldwide
Main organizations and websites
Fluoroquinolone Toxicity Study (United States)
Website: https://fq100.org
Support groups page: https://fq100.org/find-support
Non-profit organization that funds independent research and centralizes many support groups.
Quintox Support UK (United Kingdom)
Website: https://www.quintoxsupport.co.uk
Email: quintoxuk@btinternet.com
Very active advocacy group that participated in the EMA public hearing in 2018.
Canadian Quinolone Support Group (Canada)
Website: http://canquinsupport.weebly.com
Goal: support, information and advocacy for Canadian victims.
Association Fluoroquinolones France (France)
Website: https://www.fluoroquinolones-france.fr
French non-profit association that brings together several hundred victims in France, runs a closed Facebook group and campaigns for better information and care.
My Quin Story (United States)
Website: https://www.myquinstory.info
Historical guide to Facebook groups: https://www.myquinstory.info/guide-fluoroquinolone-facebook-groups-pages/
Main Facebook groups (international and general)
Fluoroquinolone Toxicity 24/7 Live Chat Group
https://www.facebook.com/groups/191063714251094
Fluoroquinolone Toxicity Worldwide Group
https://www.facebook.com/groups/1105499342800113/
Surviving Antibiotic Adverse Reactions Avelox, Cipro, Levaquin, Floxin
https://www.facebook.com/groups/261231253984443
Floxed Treatment – Healing Fluoroquinolone Toxicity
https://www.facebook.com/groups/floxedtreatment
FQAD Fluoroquinolone Associated Disability Public Group
https://www.facebook.com/groups/764618707017951
This is Floxed Up - Advocacy Group for Fluoroquinolone Toxicity
https://www.facebook.com/groups/3361898517305386
FQ Awareness and Education
https://www.facebook.com/groups/FQAwarenessAndEducation
Floxie Finder (to meet locally)
https://www.facebook.com/groups/222676757897021
Floxie Hangout
https://www.facebook.com/groups/256123468063447
Fluoroquinolone Antibiotic Toxicity (public page)
https://www.facebook.com/FluoroquinoloneToxicity
My Quin Story (page)
https://www.facebook.com/MyQuinStory
Groups by country or region
Netherlands
Nederlands Fluorochinolonen Group
https://www.facebook.com/groups/997027542123215
United Kingdom
Quinolone Toxicity Support UK
https://www.facebook.com/groups/quinolonetoxicitysupportuk
France
Facebook page linked to Association Fluoroquinolones France
https://www.facebook.com/avelox.oflocet.ciprofloxacine
Closed group “Quinolones France” (accessible via the association)
Germany
https://www.facebook.com/groups/658857264453649
https://www.facebook.com/profile.php?id=61581550875420
Spain and Latin America
https://www.facebook.com/groups/682014232210462
https://www.facebook.com/groups/538719363903916
https://www.facebook.com/groups/1216430965156129
Brazil
https://www.facebook.com/groups/floxiesbrasil/
Canada
https://www.facebook.com/groups/545585045494227
Australia
https://www.facebook.com/groups/1713944815557865
Belgium
https://www.facebook.com/groups/1243504816615565/
Finland
https://www.facebook.com/groups/785081024892381
https://www.facebook.com/groups/1501745554023528
Hungary
https://www.facebook.com/groups/1933770050270150
Poland
https://www.facebook.com/groups/682014232210462 (sometimes shared with others)
Turkey
https://www.facebook.com/groups/973105337879706
Europe (general)
Fluoroquinolone Toxicity Victims in Europe group (mentioned during the 2018 EMA hearing)
United States (regional)
New England Floxies
https://www.facebook.com/groups/123826181348026
Other resources and notes
Many of these groups are private or semi-private. You usually need to send a membership request and sometimes answer a few questions to prove that you are affected.
The list above includes the most visible and active groups identified in 2025-2026. New local groups appear regularly. The page https://fq100.org/find-support remains one of the best sources to keep this list updated.
This list is intended to be copied as-is into a blog or document.
3
Elenco dei principali gruppi e risorse di sostegno e attivismo sulla tossicità dei fluorochinoloni (FQ / FQAD / floxies) nel mondo
Organizzazioni e siti principali
Fluoroquinolone Toxicity Study (Stati Uniti)
Sito: https://fq100.org
Pagina con l’elenco dei gruppi di sostegno: https://fq100.org/find-support
Associazione no-profit che finanzia ricerche indipendenti e centralizza molti gruppi di supporto.
Quintox Support UK (Regno Unito)
Sito: https://www.quintoxsupport.co.uk
Email: quintoxuk@btinternet.com
Gruppo molto attivo nell’advocacy, ha partecipato all’audizione pubblica dell’EMA nel 2018.
Canadian Quinolone Support Group (Canada)
Sito: http://canquinsupport.weebly.com
Obiettivo: sostegno, informazione e advocacy per le vittime canadesi.
Association Fluoroquinolones France (Francia)
Sito: https://www.fluoroquinolones-france.fr
Associazione francese che riunisce diverse centinaia di vittime in Francia, gestisce un gruppo Facebook chiuso e milita per una migliore informazione e presa in carico.
My Quin Story (Stati Uniti)
Sito: https://www.myquinstory.info
Guida storica ai gruppi Facebook: https://www.myquinstory.info/guide-fluoroquinolone-facebook-groups-pages/
Principali gruppi Facebook (internazionali e generali)
Fluoroquinolone Toxicity 24/7 Live Chat Group
https://www.facebook.com/groups/191063714251094
Fluoroquinolone Toxicity Worldwide Group
https://www.facebook.com/groups/1105499342800113/
Surviving Antibiotic Adverse Reactions Avelox, Cipro, Levaquin, Floxin
https://www.facebook.com/groups/261231253984443
Floxed Treatment – Healing Fluoroquinolone Toxicity
https://www.facebook.com/groups/floxedtreatment
FQAD Fluoroquinolone Associated Disability Public Group
https://www.facebook.com/groups/764618707017951
This is Floxed Up - Advocacy Group for Fluoroquinolone Toxicity
https://www.facebook.com/groups/3361898517305386
FQ Awareness and Education
https://www.facebook.com/groups/FQAwarenessAndEducation
Floxie Finder (per incontrarsi localmente)
https://www.facebook.com/groups/222676757897021
Floxie Hangout
https://www.facebook.com/groups/256123468063447
Fluoroquinolone Antibiotic Toxicity (pagina pubblica)
https://www.facebook.com/FluoroquinoloneToxicity
My Quin Story (pagina)
https://www.facebook.com/MyQuinStory
Gruppi per paese o regione
Paesi Bassi
Nederlands Fluorochinolonen Group
https://www.facebook.com/groups/997027542123215
Regno Unito
Quinolone Toxicity Support UK
https://www.facebook.com/groups/quinolonetoxicitysupportuk
Francia
Pagina Facebook collegata all’Association Fluoroquinolones France
https://www.facebook.com/avelox.oflocet.ciprofloxacine
Gruppo chiuso “Quinolones France” (accessibile tramite l’associazione)
Germania
https://www.facebook.com/groups/658857264453649
https://www.facebook.com/profile.php?id=61581550875420
Spagna e America Latina
https://www.facebook.com/groups/682014232210462
https://www.facebook.com/groups/538719363903916
https://www.facebook.com/groups/1216430965156129
Brasile
https://www.facebook.com/groups/floxiesbrasil/
Canada
https://www.facebook.com/groups/545585045494227
https://www.facebook.com/groups/1713944815557865
Belgio
https://www.facebook.com/groups/1243504816615565/
https://www.facebook.com/groups/785081024892381
https://www.facebook.com/groups/1501745554023528
Ungheria
https://www.facebook.com/groups/1933770050270150
Polonia
https://www.facebook.com/groups/682014232210462 (a volte condiviso con altri)
Turchia
https://www.facebook.com/groups/973105337879706
Europa (generale)
Gruppo Fluoroquinolone Toxicity Victims in Europe (citato durante l’audizione EMA 2018)
Stati Uniti (regionali)
New England Floxies
https://www.facebook.com/groups/123826181348026
Altre risorse e note
Molti di questi gruppi sono privati o semi-privati. Di solito è necessario inviare una richiesta di adesione e a volte rispondere ad alcune domande per dimostrare di essere interessati.
L’elenco sopra include i gruppi più visibili e attivi individuati nel 2025-2026. Nuovi gruppi locali appaiono regolarmente. La pagina https://fq100.org/find-support rimane una delle migliori fonti per aggiornare questo elenco.
Questo elenco è destinato a essere copiato così com’è in un blog o in un documento.
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